#33 | "We Have to Pay to Keep Parenting."
Notas do episódio
When your autistic child turns 18, you stop being their parent in the eyes of the law. You have to apply to the Court of Protection, pay £850, wait four months, and hope social services don't oppose it. If you don't, hospitals won't listen to you and you can't touch their bank account.
We didn't know this. Most parents of young autistic children don't. A petition hit the parliamentary website asking for it to be scrapped for families where a capacity assessment already confirms the child permanently lacks capacity. The government said no.
This week we also talk about Andy's relationship breaking down, what it's like becoming one of the statistics, and the growing pile of comments from people telling us we're doing this wrong. From "did you ask your daughter's permission" to "autism doesn't exist, it's just bad parenting" from a mainstream teacher. We read them out. We don't hold back.
Plus the London Marathon is three and a half weeks away. The furthest either of us has run is 5K. Sean has been smashing half marathons. We're in trouble.
🔑 Key moments:0:00 — We're back2:02 — Andy's relationship breakdown5:12 — The petition that stopped us scrolling5:38 — What happens when your autistic child turns 186:35 — Deputyship: what it costs and what happens if you don't apply9:05 — The government's response10:35 — London Marathon training (or lack of it)14:06 — £6,559 raised for Ambitions About Autism17:59 — The Cyprus autism half marathon28:26 — How we upset people (reform, pronouns, and profoundly autistic)40:03 — The pronoun comment43:14 — The Hidden 20% podcast backlash45:57 — "Did you ask your daughter's permission?"51:56 — "Classic autism parents making money off their children"53:47 — A teacher who says autism doesn't exist
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