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The Caregiver’s Journey

de Sue Ryan and Nancy Treaster

NovoWhat are Area Agencies on Aging? Three Essential Tips / Alzheimer’s and Other Dementias3 de novembro de 2026 · 29 min
Episódios
75
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Último episódio
3 nov 2026
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Sobre o podcast

The Caregiver’s Journey podcast is an innovative and refreshing way to learn how to tackle day-to-day Alzheimer's and dementia family caregiving challenges with strength, patience, and peace of mind. Using practical tips and candid conversations, Sue Ryan and Nancy Treaster help you navigate caregiving’s ups and downs, so you move from feeling frustrated, overwhelmed, and sometimes frightened - to confident, balanced, and supported.

Episódios 75

  1. What are Area Agencies on Aging? Three Essential Tips / Alzheimer’s and Other Dementias

    29 minTemporada 3 · Episódio 74

    Have you heard of the AAA? Not the one that changes your tires, the one that can connect you with valuable resources in your community. In this case, AAA stands for Area Agencies on Aging. Their resources can …

    Notas do episódio

    Have you heard of the AAA? Not the one that changes your tires, the one that can connect you with valuable resources in your community. In this case, AAA stands for Area Agencies on Aging. Their resources can make a significant difference for you and your loved one living with dementia.


    We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer’s and other types of dementia, we know how hard it can be to find the right help at the right time. We’re sharing insights from Sandy Markwood, CEO of USAging, the national organization that represents Area Agencies on Aging and Title VI Native American Aging Programs. Sandy has been a nationally recognized advocate for older adults for many years. She was a caregiver for her mother, who lived with dementia, so she understands this journey personally as well as professionally.


    While AAAs were established in 1973 as part of a reauthorization of the Older Americans Act (OAA), they have been represented by USAging since 1975. The AAA’s work to ensure every American can age with maximum health, well-being, independence and dignity.


    Connect with us and share your tips:


    Full Show Notes

    https://thecaregiversjourney.org/74-what-is-an-area-agency-on-aging-three-essential-tips-alzheimers-and-other-dementias/


    Additional Resources Mentioned


    Takeaways

    Tip 1: Learn what the area agency on aging is and what it offers

    Tip 2: Know the eligibility requirements

    Tip 3: Find your area agency on aging



    Read More in This Blog

    https://thecaregiversjourney.org/74-what-is-an-area-agency-on-aging-three-essential-tips-alzheimers-and-other-dementias-2/

  2. The Messy Middle Steps 11-14 Navigating Dementia Caregiving Roadmap V4 / Alzheimer’s and Other Dementias

    22 minTemporada 3 · Episódio 73

    When someone gets a diagnosis of dementia, there are two people who need to be cared for: the person living with dementia and you, the primary caregiver.” Nancy Treaster Are you inserting yourself more and more …

    Notas do episódio

    When someone gets a diagnosis of dementia, there are two people who need to be cared for: the person living with dementia and you, the primary caregiver.” Nancy Treaster


    Are you inserting yourself more and more into the activities of daily living for your loved one who is living with dementia? Are you struggling to find the knowledge and resources you need to manage? Have you worked through the first 10 steps of the Navigating Dementia Caregiving Roadmap?


    We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer’s and other types of dementia, we know how quickly the daily demands grow once you reach the middle of the caregiving journey. This post covers steps 11 through 14 of our 20-step Navigating Dementia Caregiving Roadmap, all of which fall in the stage we call the messy middle.


    Connect with us and share your tips:


    Full Show Notes

    https://thecaregiversjourney.org/73-the-messy-middle-steps-11-14-navigating-dementia-caregiving-roadmap-v4-alzheimers-and-other-dementias/

    Additional Resources Mentioned


    Takeaways

    Step 11: Focus on safety.

    Step 12: Continue to prioritize your self-care.

    Step 13: Educate yourself on the activities of daily living.

    Step 14: Create a care plan. At a minimum, a family emergency plan.


    Read More in This Blog

    https://thecaregiversjourney.org/73-the-messy-middle-steps-11-14-of-the-navigating-dementia-caregiving-roadmap-alzheimers-and-other-dementias/


  3. Getting the Most Out of Doctor’s Visits: Four Essential Tips / Alzheimer’s and Other Dementias

    23 minTemporada 3 · Episódio 72

    Do you leave your loved one’s doctor’s appointments feeling intimidated or confused instead of empowered? Do you wish you had a clearer role in shaping their care? Many caregivers feel this way, and there is a …

    Notas do episódio

    Do you leave your loved one’s doctor’s appointments feeling intimidated or confused instead of empowered? Do you wish you had a clearer role in shaping their care? Many caregivers feel this way, and there is a better way to approach these visits.


    We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer’s and other types of dementia, we know how much rides on every doctor’s visit and how easy it is to walk out feeling unheard. We’re sharing insights about how to rethink your role at medical appointments from Dr. Paul Nussbaum, a clinical neuropsychologist licensed in Florida and Pennsylvania and founder of the Brain Health Center. Dr. Nussbaum has spent decades caring for people living with dementia and their families. He has also been a family caregiver himself, so he understands both sides of the table.


    Connect with us and share your tips:


    Full Show Notes

    https://thecaregiversjourney.org/72-getting-the-most-out-of-doctors-visits-four-essential-tips-alzheimers-and-other-dementias/


    Additional Resources Mentioned


    Takeaways

    Tip 1: Check your state of mind

    Tip 2: Get prepared

    Tip 3: Communicate at the appointment

    Tip 4: Follow-up


    Read More in This Blog

    https://thecaregiversjourney.org/72-getting-the-most-out-of-doctors-visits-four-essential-tips-alzheimers-and-other-dementias-2/


  4. Navigating Dementia Caregiving Roadmap V4 Steps 7-10 / Alzheimer’s and Other Dementias

    23 minTemporada 3 · Episódio 71

    Did your loved one recently receive a diagnosis of dementia? Have you already worked through the first six steps of the Navigating Dementia Caregiving Roadmap? If so, you’ve built a solid foundation, and it’s …

    Notas do episódio

    Did your loved one recently receive a diagnosis of dementia? Have you already worked through the first six steps of the Navigating Dementia Caregiving Roadmap? If so, you’ve built a solid foundation, and it’s time to keep going.

    We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer’s and other types of dementia, we created the Navigating Dementia Caregiving Roadmap to guide you through your caregiving journey. The roadmap has 20 steps, organized into three stages: in the beginning, the messy middle, and later on. (For more on all three stages, see Podcast and Blog 66.) You can find the full, interactive roadmap, along with a free downloadable digital guide, at thecaregiversjourney.org — just click the Caregiving Roadmap icon on the homepage. The roadmap also includes a self-assessment tool: five questions that will help you identify which stage of caregiving you’re in. Wherever you land, we recommend going back to look at the steps before that stage, so you don’t miss anything important.

    In this episode, we’re covering steps seven through ten — still part of the “in the beginning” stage. If you haven’t worked through steps one through six yet, start there first (see Blog 68), since a lot of that early work is done side by side with your loved one.


    Connect with us and share your tips:


    Full Show Notes

    https://thecaregiversjourney.org/71-navigating-dementia-caregiving-roadmap-v4-steps-7-10-alzheimers-and-other-dementias/


    Additional Resources Mentioned


    Takeaways

    In this episode we covered steps 7-10 of the 20 step roadmap.

    The last of the steps in the In The Beginning stage.

    • Step 7: Continue your education
    • Step 8: Start planning for the next stage of care
    • Step 9: Investigate your local government community support
    • Step 10: Evaluate driving risks


    Read More in This Blog

    https://thecaregiversjourney.org/71-navigating-dementia-caregiving-roadmap-v4-steps-7-10-alzheimers-and-other-dementias-2/

  5. Choosing the Right Memory Care Community: Six Essential Tips / Alzheimer’s and Other Dementias

    24 minTemporada 3 · Episódio 70

    “There’s no perfect option out there, and there’s no community that’s going to check every single box.” — Kelly Graffius Are you facing the moment you hoped would never come, trying to choose the right memory …

    Notas do episódio

    “There’s no perfect option out there, and there’s no community that’s going to check every single box.” — Kelly Graffius

    Are you facing the moment you hoped would never come, trying to choose the right memory care community for your loved one? If you are not sure where to start, you are not alone.

    We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer’s and other types of dementia, we know how emotional and complicated this decision can feel. We’re sharing six practical tips from Kelly Graffius, certified senior advisor and president of OASIS Senior Advisors in Roswell, Georgia, who has guided countless families through this exact process.

    If you are early in your dementia journey, you may start out evaluating independent or assisted living. No matter where you begin, this often leads to evaluating memory care as well, so this is our focus here.

    Full Show Notes

    https://thecaregiversjourney.org/70-choosing-the-right-memory-care-community-six-essential-tips-alzheimers-and-other-dementias/

    Additional Resources Mentioned


    Takeaways

    Tip 1: Know your goals.

    Tip 2: Decide on your preferred geographic location.

    Tip 3: Decide on your all in budget.

    Tip 4: Understand the care component.

    Tip 5: Go on a tour.

    Tip 6: Consider using an expert


    Read More in This Blog

    https://thecaregiversjourney.org/70-choosing-the-right-memory-care-community-six-essential-tips/

  6. Five Changing Caregiving Roles / Alzheimer’s and Other Dementias

    25 minTemporada 3 · Episódio 69

    "Two words have been the foundation of every decision I made across all of my caregiving roles — safe and happy. Before every choice, I would ask, does this help my loved one be safe? And does this support them …

    Notas do episódio

    "Two words have been the foundation of every decision I made across all of my caregiving roles — safe and happy. Before every choice, I would ask, does this help my loved one be safe? And does this support them being happy?" — Sue Ryan

    There was a moment in a doctor's office when five neurologists agreed on one word: dementia. In that moment, Sue looked at her husband Jack, squeezed his hand, and said, "I love you. We're on this journey together." What she couldn't have known at that moment was how many roles she'd be asked to take on — and how, through every single one of them, their love wouldn't disappear. It would just change shape.

    We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer's and other types of dementia, we understand how caregiving can feel all-consuming — so much so that love can get buried under the weight of daily responsibilities. In this post, we're drawing from Sue's chapter in the Caregivers Advocate Book, Volume Three: "When Caregiving Roles Change, Love Remains," to explore five distinct roles caregiving calls us into and how to show up in each one so love doesn't get lost.

    Underneath all five roles, two practices held everything together for Sue: acceptance — honoring everything exactly the way it is, without having to like it or understand it — and presence, staying fully in the moment rather than wishing for the past or worrying about the future.

    Let's explore the five roles and how to be intentional in each of them.

    Connect with us and share your tips:


    Full Show Notes

    https://thecaregiversjourney.org/69-five-changing-caregiving-roles-alzheimers-and-other-dementias/


    Additional Resources Mentioned


    Takeaways

    We discussed five roles:

    • Role 1: Protector — Recognizing it’s up to you to keep your loved one safe
    • Role 2: Loved One — expressing your love intentionally, every time
    • Role 3: Primary Caregiver — meeting your care receiver in the moment, not where they used to be or where you wish they were
    • Role 4: Care Partner — supporting and expressing gratitude to the care team on your loved one's behalf
    • Role 5: Friend — finding the friendship that's still possible


    Read More in This Blog

    https://thecaregiversjourney.org/69-five-roles-that-transform-caregiving-and-how-love-survives-each-one/


  7. Navigating Dementia Caregiving Roadmap V4 Steps 1-6 / Alzheimer’s and Other Dementias

    26 minTemporada 3 · Episódio 68

    Did your loved one recently receive a diagnosis of dementia? Are you at a loss for what to do next? Maybe you’re overwhelmed because you can’t find the information you need — or maybe it’s the opposite, and …

    Notas do episódio

    Did your loved one recently receive a diagnosis of dementia? Are you at a loss for what to do next? Maybe you’re overwhelmed because you can’t find the information you need — or maybe it’s the opposite, and you’re drowning in so many conflicting resources that you don’t know where to start.

    We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer’s and other types of dementia, we know how disorienting those first weeks after a diagnosis can be. That’s why we created the Navigating Dementia Caregiving Roadmap — 20 steps to guide you through your caregiving journey, organized into the three stages of dementia caregiving: in the beginning, the messy middle, and later on. (If you want to hear more about all three stages, check out Podcast and Blog 66.)

    In this episode, we’re walking through the first six steps of the roadmap — the steps we recommend you take right after diagnosis, while you’re in the “in the beginning” stage. You can find the full, interactive roadmap, along with a free downloadable guide, at thecaregiversjourney.org.

    Connect with us and share your tips:


    Full Show Notes

    https://thecaregiversjourney.org/68-dementia-caregiving-roadmap-v4-steps-1-6-alzheimers-and-other-dementias/


    Additional Resources Mentioned


    Takeaways

    We discussed the first 6 steps:

    • Step 1: Reach out for guidance
    • Step 2: Update legal documents, end of life planning and other long term care plans
    • Step 3: Understand the financial situation
    • Step 4: Find support groups
    • Step 5: Educate yourself on early caregiving journey topics
    • Step 6: Investigate the US Medicare GUIDE program


    Read More in This Blog

    https://thecaregiversjourney.org/68-the-first-six-steps-to-take-after-a-dementia-diagnosis/

  8. Show Up, Stay Present, Keep Finding Ways to Connect: Four Essential Tips / Alzheimer’s and Other Dementias

    26 minTemporada 3 · Episódio 67

    “When I look back on my caregiving experience, I found a purpose and a true sense of self that I didn’t know I had. Yes, there was a lot of drama and a lot of trauma, but I look back and think - this was a …

    Notas do episódio

    “When I look back on my caregiving experience, I found a purpose and a true sense of self that I didn’t know I had. Yes, there was a lot of drama and a lot of trauma, but I look back and think - this was a great experience and something I feel good about doing for the people I love.” - Nancy Treaster

    There’s a moment in dementia caregiving where you realize your relationship has fundamentally changed. Your loved one may no longer recognize your name, your face, or the decades you’ve shared together. How do you keep loving someone through that? How do you stay present when the person in front of you is both familiar and a stranger?

    We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer’s and other types of dementia, we’ve navigated these moments personally - and we’re sharing what we’ve learned about showing up, staying present, and working to keep finding ways to connect with your loved one as their memory fades. Nancy’s chapter, “Love Beyond Memory,” is featured in the Caregivers Advocate, Volume 3.

    Let’s explore four tips for loving beyond memory - even when the person you love doesn’t remember who you are.

    Connect with us and share your tips:


    Full Show Notes

    https://thecaregiversjourney.org/67-show-up-stay-present-keep-finding-ways-to-connect-four-tips-alzheimers-and-other-dementias/


    Additional Resources Mentioned


    Takeaways

    We shared 4 tips:

    • Don't flip the switch
    • Let go of who they were, and fall in love with who they are now
    • Redefine what connection means
    • Give yourself permission to get help — before you are drowning


    Read More in This Blog

    https://thecaregiversjourney.org/67-love-beyond-memory-four-tips-for-showing-up-staying-present-and-staying-connected/


  9. What Stage of Dementia Caregiving Are You in? / Alzheimer’s and Other Dementias

    25 minTemporada 3 · Episódio 66

    Have you ever felt overwhelmed searching for the right information at the right time, or found yourself drowning in conflicting resources that leave you more confused than when you started? You’re not alone …

    Notas do episódio

    Have you ever felt overwhelmed searching for the right information at the right time, or found yourself drowning in conflicting resources that leave you more confused than when you started? You’re not alone. Dementia family caregiving is a long journey, and it looks very different depending on where you are in it.


    We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer’s and other types of dementia, we built the Navigating Dementia Caregiving Roadmap to help you find the right resources at the right time. As with all our resources, it’s a free, 20-step roadmap available on our website thecaregiversjourney.org. The roadmap page also includes a self-assessment tool to help you identify which caregiving stage you’re in right now. Revisit this assessment tool throughout your caregiving journey to help you know the caregiving stage you’re currently in.


    Let’s walk through the three distinct stages of dementia family caregiving so you know what to expect and where to focus your energy.


    Connect with us and share your tips:


    Full Show Notes

    https://thecaregiversjourney.org/66-what-stage-of-dementia-caregiving-are-you-in-alzheimers-and-other-dementias/


    Additional Resources Mentioned


    Takeaways

    The three stages of dementia family caregiving and the self-assessment tool on the caregiving roadmap page of our website, thecaregiversjourney.org.

    • The first stage is “In the Beginning.”
    • The second stage is “The Messy Middle.”
    • The third stage is “Later On.”

    If our self-assessment tool shows you are further along in your journey, start there. Once you feel confident in where you are, we encourage you to go back and explore the earlier steps. You may find helpful tips that apply to where you are today, even if those steps were designed for an earlier part of the journey.

    Read More in This Blog

    https://thecaregiversjourney.org/66-what-stage-of-dementia-caregiving-are-you-in/


  10. Help for Solo Caregivers: Four Resource Areas / Alzheimer’s and Other Dementias

    22 minTemporada 3 · Episódio 65

    Do you feel completely alone in your caregiving journey? No family backup, friends have faded away, and you can’t afford professional help? You are not alone — and there is real help available, often at little …

    Notas do episódio

    Do you feel completely alone in your caregiving journey? No family backup, friends have faded away, and you can’t afford professional help? You are not alone — and there is real help available, often at little or no cost.

    We are Elizabeth Miller of Happy Healthy Caregiver and Sue Ryan and Nancy Treaster of The Caregiver's Journey. In this podcast we’ve joined forces with - together we’ve lived it, learned from it, and made it our mission to walk alongside family caregivers. We’re sharing four key resource areas that can provide real relief without breaking the bank.


    Think about the analogy of a frog in water. If a frog jumps into boiling water, it immediately jumps out. But if the water starts lukewarm and slowly heats up, the frog doesn’t realize the danger until it’s too late. That’s how burnout works for caregivers — especially solo caregivers with fewer helping hands. The average caregiver is in this role for four and a half years. For dementia family caregivers, it can stretch to ten years or more. You can do it alone for a while, but not indefinitely. Here’s where to turn.

    Full Show Notes

    https://thecaregiversjourney.org/podcast/

    Additional Resources Mentioned

    Read More in This Blog

    https://thecaregiversjourney.org/65-help-for-solo-caregivers-four-resource-areas/

  11. Falling - Spot Risks, Stay Calm, Heal Afterwards: Five Tips / Alzheimer’s and Other Dementias

    26 minTemporada 3 · Episódio 64

    “When families are prepared — physically, emotionally, logistically — they are able to handle these moments a lot differently. There’s less panic, less guilt, and a little bit more empowerment.” — Dr. Taylor …

    Notas do episódio

    “When families are prepared — physically, emotionally, logistically — they are able to handle these moments a lot differently. There’s less panic, less guilt, and a little bit more empowerment.” — Dr. Taylor Rush


    One minute, everything’s fine. The next minute, your loved one is on the floor. If fall prevention isn’t on your radar yet — or if you’re waiting until after the first fall happens — you’re not alone. But there’s a lot you can do right now to be better prepared.


    We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer’s and other types of dementia, we know firsthand how frightening falls can be — and how much the fear of a fall can affect both the person you’re caring for and yourself. We’re sharing five practical tips drawn from the expertise of Dr. Taylor Rush, clinical health psychologist and director of behavioral sciences and interdisciplinary programs at the Cleveland Clinic Center for Neurological Restoration. Taylor specializes in chronic neurological conditions including Parkinson’s and movement disorders, with a deep focus on supporting care partners through the challenges they face every day.


    Let’s walk through five essential tips for preventing falls, handling them when they happen, and managing the emotional aftermath — for both you and your loved one.

    Connect with us and share your tips:


    Full Show Notes

    https://thecaregiversjourney.org/64-falling-spot-risks-stay-calm-heal-afterwards-five-tips-alzheimers-and-other-dementias/


    Additional Resources Mentioned


    Takeaways

    We shared 5 tips:

    1. Know your loved one's fall risk factors
    2. Reduce risk with practical prevention strategies
    3. Start the conversation early — and have a plan
    4. Stay calm and assess — don't panic in the moment
    5. Manage the emotional aftermath of a fall


    Read More in This Blog

    https://thecaregiversjourney.org/64-falling-spot-risks-stay-calm-heal-afterwards-five-essential-tips/

  12. Meaningful Conversation: Five Essential Tips / Alzheimer’s and Other Dementias

    25 minTemporada 3 · Episódio 63

    "Once caregivers get it, they're like, 'My gosh.' You just have to train yourself to walk around the brick wall to the moment, the now, and the imagination." — Anne Basting Do you struggle to create meaningful …

    Notas do episódio

    "Once caregivers get it, they're like, 'My gosh.' You just have to train yourself to walk around the brick wall to the moment, the now, and the imagination." — Anne Basting

    Do you struggle to create meaningful connections with your loved one living with dementia? Almost all of us do. You're not alone — and there are concrete tools you can learn right now to change that.

    We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer's and other types of dementia, we understand how isolating it can feel when conversations stall and connection seems just out of reach. We're sharing five tips for creating intentionally meaningful moments with your loved one, from Anne Basting, founder of the award-winning nonprofit TimeSlips, who has spent 30 years developing and researching creative storytelling approaches for people living with dementia.

    Let's explore five essential tips for creating meaningful connections — from believing in your own creativity to turning shared moments into lasting gifts.

    Connect with us and share your tips:


    Full Show Notes

    https://thecaregiversjourney.org/63-meaningful-conversation-five-essential-tips-alzheimers-and-other-dementias/

    Additional Resources Mentioned


    Takeaways

    We shared 5 tips:

    1. Believe in your own creativity
    2. Forget memory
    3. Open with a beautiful question
    4. Use beautiful listening
    5. Create gifts from the experience


    Read More in This Blog

    https://thecaregiversjourney.org/63-meaningful-conversation-five-essential-tips-alzheimers-and-other-dementias-2/

  13. What Is a Virtual Dementia Tour?: Three Essential Tips / Alzheimer’s and Other Dementias

    27 minTemporada 3 · Episódio 62

    “I don’t think any of us should be trying to assist a person with dementia without first walking in their shoes.” — PK Beville, Ph.D. Have you ever wondered what it actually feels like to live with dementia? Do …

    Notas do episódio

    “I don’t think any of us should be trying to assist a person with dementia without first walking in their shoes.” — PK Beville, Ph.D.


    Have you ever wondered what it actually feels like to live with dementia? Do you find yourself struggling to understand why your loved one behaves the way they do, wishing you could see the world through their eyes- even for a moment? There’s a powerful tool that can help you do exactly this.


    We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer’s and other types of dementia, we know how much empathy and understanding matter in day-to-day care. We’re sharing insights today from PK Beville, Ph.D., founder of the global nonprofit Second Wind Dreams® and inventor of the Virtual Dementia Tour, a simulation experience that has changed how nearly five million people worldwide understand and care for people living with dementia.


    If you’re following along with the Navigating Dementia Caregiving Roadmap, this is part of Step Seven — educating yourself. You can find the full roadmap as an interactive page on our website at thecaregiversjourney.org. Steps one through six help you build your foundation right after a diagnosis. Steps seven through ten are about deepening your understanding, and the Virtual Dementia Tour is one of the essential resources we recommend in this phase.


    Let’s explore three essential tips — from understanding what the Virtual Dementia Tour is, to applying what you learn at home, to finding one near you.

    Connect with us and share your tips:


    Full Show Notes

    https://thecaregiversjourney.org/62-what-is-a-virtual-dementia-tour-three-essential-tips-alzheimers-and-other-dementias/

    Additional Resources Mentioned


    Takeaways

    We shared 3 tips:

    1. Learn what happens in a Virtual Dementia Tour
    2. Apply what you learn at home
    3. Find a virtual dementia tour near you


    Read More in This Blog

    https://thecaregiversjourney.org/62-what-is-a-virtual-dementia-tour-three-essential-tips-alzheimers-and-other-dementias-2/

  14. Turn Your Wishes Into Reality: Three Essential Tips / Alzheimer’s and Other Dementiastled Project

    25 minTemporada 3 · Episódio 61

    WOOP is a very practical technique for anything from emotions to something on your to-do list — it can be used for many different kinds of wishes." — Donna Fedus How many times have you been told that taking …

    Notas do episódio

    WOOP is a very practical technique for anything from emotions to something on your to-do list — it can be used for many different kinds of wishes." — Donna Fedus


    How many times have you been told that taking care of yourself is really important — and felt overwhelmed just thinking about it? You are not alone in this struggle, and there is a simple, evidence-based process that can help.


    We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer's and other types of dementia, we understand how hard it can be to find time — and energy — for your own wellbeing. We are sharing insights from Donna Fedus, gerontologist and founder of Borrow My Glasses, about an evidence-based process called WOOP — yes, WOOP — and how it can help caregivers turn their wishes into reality.


    Donna has been a gerontologist for 35 years and a dementia educator for nearly 20. She founded Borrow My Glasses in 2013 and has been instrumental in bringing WOOP to dementia family caregivers through a nationally funded study conducted with Yale University.


    Let's explore three essential tips for putting WOOP to work in your caregiving life.

    Connect with us and share your tips:


    Full Show Notes

    https://thecaregiversjourney.org/61-turn-your-wishes-into-reality-three-essential-tips-alzheimers-and-other-dementias-2/

    Additional Resources Mentioned


    Takeaways

    We shared 3 tips:

    Tip 1: WOOP it up

    Tip 2: Hone in on your wish

    Tip 3: Make it work!


    Read More in This Blog

    https://thecaregiversjourney.org/61-turn-your-wishes-into-reality-three-essential-tips-alzheimers-and-other-dementias/

  15. Use Cognitive Simulation Therapy at Home: Three Essential Tips / Alzheimer’s and Other Dementias

    27 minTemporada 3 · Episódio 60

    "While we can't reverse aging, regular mental activity — these exercises, regular cognitive engagement — helps keep cognitive skills stronger for longer. It's like exercising your body." — Dr. Daniel Fenton …

    Notas do episódio

    "While we can't reverse aging, regular mental activity — these exercises, regular cognitive engagement — helps keep cognitive skills stronger for longer. It's like exercising your body." — Dr. Daniel Fenton

    What if you could make small changes and have more intentional conversations with your loved one that actively stimulate their brain? You're not doing one more thing — you're simply being more deliberate about conversations you're already having and sneaking in more benefits along the way.

    We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer's and other types of dementia, we understand how meaningful it is to find ways to help our loved ones function at their best for longer. We're sharing insights about cognitive stimulation therapy (CST) from Dr. Daniel Fenton, head of neuropsychological services at New Days, a virtual clinic specializing in care for people with mild cognitive impairment and early-stage dementia.

    Let's explore three essential tips for bringing cognitive stimulation therapy into your everyday conversations at home.

    Connect with us and share your tips:


    Full Show Notes

    https://thecaregiversjourney.org/60-use-cognitive-simulation-therapy-at-home-three-essential-tips-alzheimers-and-other-dementias/

    Additional Resources Mentioned


    Takeaways

    We shared 3 tips:

    Tip 1: Create A Simple Structure

    Tip 2: Leverage These Types Of Activities

    Tip 3: Don’t Forget To Wrap Up And Reflect


    Read More in This Blog

    https://thecaregiversjourney.org/60-three-tips-for-using-cognitive-stimulation-therapy-at-home/

  16. Protect Your Brain Health: Three Essential Tips / Alzheimer’s and Other Dementias

    24 minTemporada 3 · Episódio 59

    As a family caregiver, you spend so much time worrying about your loved one's brain health. But what about your own? The good news is that there are real, evidence-backed steps you can take to improve your …

    Notas do episódio

    As a family caregiver, you spend so much time worrying about your loved one's brain health. But what about your own? The good news is that there are real, evidence-backed steps you can take to improve your brain health and reduce your risk of cognitive decline — even in the midst of a demanding caregiving journey.

    We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer's and other types of dementia, we know how easy it is to put yourself last. That's why we're sharing insights from Shelby Roberts, Senior Director of Public Health for the Alzheimer's Association, about protecting your brain health and reducing your risk of cognitive decline and dementia. We're sharing three tips.

    Connect with us and share your tips:


    Full Show Notes

    https://thecaregiversjourney.org/59-protect-your-brain-health-three-essential-tips-alzheimers-and-other-dementias/

    Additional Resources Mentioned


    Takeaways

    We shared 3 tips:

    Tip 1: Learn about the 10 health habits for your brain

    Tip 2: Know yourself

    Tip 3: Pick a place to start


    Read More in This Blog

    https://thecaregiversjourney.org/59-protecting-your-brain-health-three-essential-tips-for-dementia-caregivers/

  17. What Is a Certified Senior Advisor: Three Essential Tips / Alzheimer’s and Other Dementias

    27 minTemporada 3 · Episódio 58

    Have you ever heard of a certified senior advisor? Would you even know what you needed or how to find one? You're not alone if the answer is no — and there are clear steps you can take to get the right help at …

    Notas do episódio

    Have you ever heard of a certified senior advisor? Would you even know what you needed or how to find one? You're not alone if the answer is no — and there are clear steps you can take to get the right help at the right time.

    We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer's and other types of dementia, we understand how overwhelming it can be to recognize when something has changed and know where to turn next. We're sharing insights from Cynthia Perthuis, principal owner of Senior Care Authority in Southwest Florida and a certified senior advisor, about finding, evaluating, and implementing solutions along the caregiving journey.

    If you're following along with the Navigating Dementia Caregiving Roadmap, this aligns with Step Eight. You can find the roadmap as a downloadable digital guide on the guides page of our website, and we've also created it as an interactive page where you can click directly into each step.

    Let's explore three essential tips for navigating this process — from recognizing when something is wrong, to finding the right help, to building a strategy that works for your whole family.

    Connect with us and share your tips:


    Full Show Notes

    https://thecaregiversjourney.org/58-what-is-a-certified-senior-advisor-three-essential-tips-alzheimers-and-other-dementias/

    Additional Resources Mentioned


    Takeaways

    We shared 3 tips:

    Tip 1: Evaluate your situation

    Tip 2: Reach out for help

    Tip 3: Create a strategy


    Read More in This Blog

    https://thecaregiversjourney.org/58-what-is-a-certified-senior-advisor-three-essential-tips-alzheimers-and-other-dementias-2/

  18. Find The Right Support Group: Four Essential Tips / Alzheimer’s and Other Dementias

    19 minTemporada 3 · Episódio 57

    “Support groups are like lifelines — we’re around other people who are going through the same thing we are, and we know we’re not alone.” Kim Franklin Do you wonder if support groups are right for you? Do you …

    Notas do episódio

    “Support groups are like lifelines — we’re around other people who are going through the same thing we are, and we know we’re not alone.” Kim Franklin


    Do you wonder if support groups are right for you? Do you know how to find one that fits your needs? Are you feeling overwhelmed and isolated in your caregiving role?


    We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer’s and other types of dementia, we’ve learned that support groups can be transformative resources on this journey. In this post, we’re sharing insights from Kim Franklin, Senior Program Manager with the Alzheimer’s Association, about how to find the right support group for you.


    Support groups offer more than just information — they provide therapeutic spaces where caregivers can come together, share their frustrations, breathe, and hear from others in similar situations. Yet many caregivers resist joining groups, thinking they don’t have time, don’t need help, or feel caregiving is a private family matter that should be handled alone.


    If you’re following along with the Navigating Dementia Caregiving Roadmap, this post supports Step Four, Find a support group. Let’s explore four essential tips for finding the right support group for your caregiving journey.

    Connect with us and share your tips:


    Full Show Notes

    https://thecaregiversjourney.org/57-find-the-right-support-group-four-essential-tips-alzheimers-and-other-dementias/


    Additional Resources Mentioned


    Takeaways

    We shared 4 tips:

    1. Start with what you need right now
    2. Choose the best format for you
    3. Explore groups that match your situation
    4. Don't settle, but don’t give up either


    Take Action: Support Groups as Self-Care

    If you haven’t yet tried a support group, consider committing this month to looking for one. Keep in mind that attending a support group isn’t just about learning how to care for your loved one — it’s also a form of self-care. You’re taking care of yourself while learning valuable information and building connections with others who understand.


    Resources to Get Started:

    • Alzheimer’s Association 24/7 Helpline: 800–272–3900. Masters-level counselors can help with crisis intervention, finding resources including support groups, and they offer interpretation in over 200 languages.
    • Community Resource Finder: Visit the Alzheimer’s Association website and enter your zip code to find support groups and other services in your community.
    • The Caregiver’s Journey Navigating Dementia Caregiving Roadmap: Available as an interactive page on our website that walks you through the three stages of your dementia family caregiver journey. Includes the option to download the guide for free.



  19. When Your Spouse Becomes Your Patient: Four Essential Tips / Alzheimer’s and Other Dementias

    26 minTemporada 3 · Episódio 56

    "One of the hardest parts in spousal caregiving is accepting that we're no longer just partners. We're now caregiver and care receiver. The loss of our emotional and physical partner and the emotional …

    Notas do episódio

    "One of the hardest parts in spousal caregiving is accepting that we're no longer just partners. We're now caregiver and care receiver. The loss of our emotional and physical partner and the emotional responsibilities we're taking on can really take an enormous toll."


    Are you struggling to find balance between being a spouse and being a caregiver? Do you find yourself wondering when the shift happened—when your partner became your patient? Have you noticed yourself "forgetting to be a spouse" because you're so focused on getting the caregiving right?


    We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer's and other types of dementia, we've experienced firsthand the complex role transition that happens when your spouse becomes your care receiver. This journey isn't a sudden switch that flips on diagnosis day—it's a slow, gradual transition that unfolds over years.


    There's a moment when you realize your relationship has fundamentally changed. Your spouse, your partner, your companion—they're still there. But the person you used to bounce ideas off of can't be that person for you anymore. This transition brings unique challenges, from managing new responsibilities to redefining intimacy to letting go of promises made years ago.


    Let's explore four essential tips for navigating the changing role from spouse to caregiver while preserving your relationship and your own wellbeing.


    Connect with us and share your tips:

    Website: https://thecaregiversjourney.org/

    Donate: https://give.cornerstone.cc/thecaregiversjourney

    Instagram: https://www.instagram.com/thecaregiversjourney/

    Facebook: https://www.facebook.com/thecaregiversjourneys/

    Linkedin: https://www.linkedin.com/in/suearmstrongryan/, https://www.linkedin.com/in/nancytreaster/

    Email: [email protected], [email protected]


    Full Show Notes

    https://thecaregiversjourney.org/56-when-your-spouse-becomes-your-patient-alzheimers-and-other-dementias/

    Additional Resources Mentioned

    Support the nonprofit The Caregiver's Journey: https://give.cornerstone.cc/thecaregiversjourney


    Takeaways

    We shared 4 tips:

    1. Find the balance in your changing role

    2. Give yourself permission to get help

    3. Keep connection while intimacy is redefined

    4. Give yourself permission to let go of promises you made years ago.

    Read More in This Blog

    https://sueryansolutions.medium.com/the-changing-role-navigating-the-transition-from-spouse-to-caregiver-90acd5fde819?postPublishedType=repub


  20. Is It an Early Sign of Dementia? Three Essential Tips / Alzheimer’s and Other Dementias

    27 minTemporada 3 · Episódio 55

    “What really helps is grounding yourself in three things: what change you’re noticing, how different it is from who this person has always been, and whether it’s getting worse over time.” — Dr. Anna Chodos Are …

    Notas do episódio

    “What really helps is grounding yourself in three things: what change you’re noticing, how different it is from who this person has always been, and whether it’s getting worse over time.” — Dr. Anna Chodos


    Are you concerned that your loved one is showing early signs of dementia? Do you find yourself noticing changes but unsure whether they’re significant? You’re not alone in this uncertainty, and there are clear steps you can take to address your concerns.


    We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer’s and other types of dementia, we understand how challenging it can be to recognize early signs of dementia and know what to do next. We’re sharing insights about practical guidance for managing through those early signs of dementia from Dr. Anna Chodos, professor of medicine in geriatrics at the University of California, San Francisco, and executive director of Dementia Care Aware, and Dr. Barry Jacobs, clinical psychologist, family therapist, and co-author of the AARP Caregiver Answer Book.


    Let’s explore three essential tips for recognizing early dementia signs — starting difficult conversations with your loved one and communicating effectively with healthcare providers.

    Connect with us and share your tips:


    Full Show Notes

    https://thecaregiversjourney.org/55-is-it-an-early-sign-of-dementia-three-essential-tips-alzheimers-and-other-dementias/


    Additional Resources Mentioned

    Takeaways

    Tip 1: Know What Signs to Look For — They’re More Than Just Memory

    Tip 2: Start Early and Normalize Health Conversations

    Tip 3: Plan Ahead for the Doctor’s Appointment


    Read More in This Blog

    https://sueryansolutions.medium.com/55-is-it-an-early-sign-of-dementia-three-essential-tips-alzheimers-and-other-dementias-5a1278aa1c2f


  21. Why the Right Dementia Diagnosis Matters: Five Essential Tips / Alzheimer’s and Other Dementias

    21 minTemporada 3 · Episódio 54

    “An accurate early dementia diagnosis is essential. It can make a significant difference in how families navigate the diagnosis.” Esther Kane, MSN, RN Your loved one has been diagnosed with dementia… but do you …

    Notas do episódio

    “An accurate early dementia diagnosis is essential. It can make a significant difference in how families navigate the diagnosis.” Esther Kane, MSN, RN


    Your loved one has been diagnosed with dementia… but do you ever wonder if they’ve been diagnosed with the correct type? Do you find yourself thinking: “This diagnosis doesn’t quite fit what I’m seeing.” You’re not alone. Getting the correct diagnosis opens the right doors to support, care, and community that you might not have known existed.


    We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer’s and other types of dementia, we’ve learned firsthand that not all dementias are the same. Understanding the specific type of dementia your loved one has ensures they’re receiving the correct medical care and helps you connect with the education, targeted support groups, and research opportunities tailored to your loved one’s specific needs.


    In this post, we’re sharing insights from Esther Kane, a registered nurse and the Director of Support and Education for the Association for Frontotemporal Degeneration (AFTD). As a director of nursing in multiple memory care facilities, Esther’s entire career has been supporting and caring for individuals living with all types of dementia. In her role at AFTD, Esther works to advance early, accurate FTD diagnoses in order to improve the quality of life for those impacted by the disease.

    We’re exploring five essential tips for ensuring your loved one receives the correct dementia diagnosis and how to leverage this knowledge for better care.

    Full Show Notes

    https://thecaregiversjourney.org/54-why-the-right-dementia-diagnosis-matters-five-essential-tips-alzheimers-and-other-dementias/


    Additional Resources Mentioned

    Takeaways

    Tip 1: Learn More About Dementia and Push to Dig Deeper

    Tip 2: Find Your Specific Diagnosis Community, Resources, and Support

    Tip 3: Monitor Disease Progression and Prepare

    Tip 4: Investigate Clinical Trials

    Tip 5: Understand the Genetic Risk Associated with This Diagnosis


    Read More in This Blog https://sueryansolutions.medium.com/53-why-the-right-dementia-diagnosis-matters-five-essential-tips-alzheimers-and-other-dementias-b6afe1179898?postPublishedType=repub


  22. The Dementia Care Financial Conversation: Five Essential Tips / Alzheimer’s and Other Dementias

    24 minTemporada 3 · Episódio 53

    "Dementia is not just a medical journey, but it's a financial and emotional one." – Devon Banning, CFP Are you avoiding the financial conversation with your loved one because it feels uncomfortable or …

    Notas do episódio

    "Dementia is not just a medical journey, but it's a financial and emotional one." – Devon Banning, CFP


    Are you avoiding the financial conversation with your loved one because it feels uncomfortable or overwhelming? Do you find yourself wondering how you'll afford care as your loved one's needs increase?

    Are you concerned about making the right financial decisions during this challenging time?

    We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer's and other types of dementia, we know that money is often the last conversation we want to have, but it's inevitable. We have to have it.


    Today, we're sharing five essential tips for navigating the financial aspects of dementia caregiving with Devon Banning, a Certified Financial Planner with Moran Wealth Management. Devon has more than 15 years of experience across a range of roles in the financial industry, and he brings invaluable depth of experience with dementia family caregiving. He's spent the majority of his career managing financial lives for individuals and families, many of whom were suddenly thrust into the caregiving role due to dementia.

    Here's what makes this conversation easier: it'll be much more manageable when we respect our loved ones' dignity, independence, and their wishes throughout all of our conversations. Today is about helping you learn options for taking your next step—options that are going to make you feel more confident without needing to have all the answers at one time.



    This episode supports step three of our Navigating Dementia Caregiving Roadmap Guide: understand the financial situation. If you've been putting this conversation off, you're definitely not alone. This is an area many caregivers hesitate to step into. It's deeply personal, and it can feel intimidating—especially if we wish we'd addressed it sooner.


    Connect with us and share your tips:

    Website: https://thecaregiversjourney.org/

    Donate: https://give.cornerstone.cc/thecaregiversjourney

    Instagram: https://www.instagram.com/thecaregiversjourney/

    Facebook: https://www.facebook.com/thecaregiversjourneys/

    Linkedin: https://www.linkedin.com/in/suearmstrongryan/, https://www.linkedin.com/in/nancytreaster/

    Email: [email protected], [email protected]


    Full Show Notes

    https://thecaregiversjourney.org/53-the-dementia-care-financial-conversation-five-essential-tips-alzheimers-and-other-dementias-2/

    Additional Resources Mentioned

    Moran Wealth Management https://moranwm.com/

    Disclaimer:This podcast is for educational and informational purposes only and does not constitute investment, legal, or tax advice. The views expressed are those of the participants as of the date recorded and may change without notice. Nothing discussed should be considered a recommendation or solicitation to buy or sell any security or to engage in any particular investment strategy. Listeners should consult their own financial, legal, or tax professionals before making any financial decisions. Moran Wealth Management is an SEC-registered investment adviser. Registration does not imply a certain level of skill or training.

    Support the nonprofit The Caregiver's Journey: https://give.cornerstone.cc/thecaregiversjourney

    Takeaways

    Get the Financial Conversation Started

    Use these 8 steps to guide the conversation

    Understand the different stages of financial considerations

    Understand The Financial Position of Your Loved One

    Consider Leveraging a Financial Planning Expert


    Read More in This Blog

    https://medium.com/@sueryansolutions/financial-planning-for-dementia-caregiving-five-essential-tips-edf00b98be82

  23. Preparing for Stormy Weather: Four Essential Tips / Alzheimer’s and Other Dementias

    22 minTemporada 2 · Episódio 52

    Are you prepared if a major storm threatens your area? Do you know whether to evacuate or shelter in place with your loved one who has dementia? Have you created a communication plan that accounts for potential …

    Notas do episódio

    Are you prepared if a major storm threatens your area? Do you know whether to evacuate or shelter in place with your loved one who has dementia? Have you created a communication plan that accounts for potential power outages and cell tower failures?

    We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer's and other types of dementia, we understand how storm season brings critical decisions that require advance planning. Whether your loved one lives at home or in a care community, preparing for storms demands special considerations for people living with dementia.

    Recently, we spoke with Celeste Lynch, Executive Director at Moorings Park Grand Lake in Naples, Florida. With nearly 40 years of experience in senior living leadership, emergency planning, and resident safety, Celeste shared invaluable insights on storm preparedness from both the care community and at-home perspectives.

    If you're following along with the Navigating Dementia Caregiving Roadmap Guide, today's topic aligns with Step 14: Create a Care Plan and Family Emergency Plan.

    Let's explore four essential tips for weathering storms safely with your loved one who has dementia.

    Connect with us and share your tips:


    Full Show Notes

    https://thecaregiversjourney.org/52-preparing-for-stormy-weather-four-essential-tips-alzheimers-and-other-dementias/

    Additional Resources Mentioned

    Takeaways

    We shared 4 tips:

    1. Preparing Ahead of Time
    2. Decide whether you will shelter in place or evacuate
    3. Strengthen Your Communication Plan Before, During, and After the Storm
    4. Post storm, safely get them back in their routine


    Read More in This Blog here

  24. Dementia Caregiving and TV: Four Essential Tips / Alzheimer’s and Other Dementias

    29 minTemporada 2 · Episódio 51

    "The difference between TV as comfort and TV as chaos isn't the screen—it's understanding how the changing brain experiences what's on it." Do you rely on television to help occupy your loved one's time? Does …

    Notas do episódio

    "The difference between TV as comfort and TV as chaos isn't the screen—it's understanding how the changing brain experiences what's on it."

    Do you rely on television to help occupy your loved one's time? Does your care receiver seem agitated or anxious when the TV is on? Have you noticed them leaving the room when a show is playing or struggling to follow programs they once enjoyed?

    We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer's and other types of dementia, we've learned that what soothes us as caregivers can actually cause distress for people living with dementia. In this episode, we spoke with Allyson Schrier, co-founder and president of Zinnia TV and former caregiver for her husband with frontotemporal dementia, about why regular TV can be problematic and what we can do about it.

    Let's explore four essential tips for managing TV time effectively.

    Connect with us and share your tips:


    Full Show Notes

    Additional Resources Mentioned

    Takeaways

    Tip 1: Be Thoughtful About What’s On TV

    The answer isn’t to take TV away completely. We need to be thoughtful about what we put on the TV and pay close attention to how our loved ones respond.

    Tip 2: Target Something That Creates Curiosity Without Agitation

    The goal is to find programming that engages without overstimulating or causing your loved one to fall asleep (because daytime sleeping can lead to nighttime wakefulness).

    Tip 3: Leverage Simulated Presence Therapy

    The innovative approach of simulated presence therapy takes advantage of how people with dementia can experience confusion between what’s on screen and what’s actually happening — and uses it to benefit them.

    What is simulated presence therapy? Research has shown that when someone will only take medication or follow instructions from a specific person (like a daughter or doctor), showing them a video of that person giving the instruction can work just as effectively as having the person physically present.

    Tip 4: Create Engaging Alternatives On Your Own

    Beyond television, there are creative ways to provide visual engagement that work better with how the dementia brain processes information.

    Observe and Adjust

    Managing the television experience for someone with dementia isn’t about finding one perfect solution. What works today may not work next month as the disease progresses, and that’s reasonable. The process is about observing how your loved one responds and adjusting accordingly.

    The key is understanding the changing brain experiences television very differently than we do. Through being thoughtful about what’s on the screen, targeting content that engages without overwhelming, leveraging simulated presence therapy, and creating our own alternatives, we can turn TV time from a potential source of agitation into a positive opportunity for comfort and connection.

    Read More in This Blog here

  25. Family Dynamics in Caregiving: Four Essential Tips / Alzheimer’s and Other Dementias

    26 minTemporada 2 · Episódio 50

    Are you struggling to pull your family together to create a working support system for someone living with dementia? Do you find family members disagreeing on what needs to be done or how to help? You're not …

    Notas do episódio

    Are you struggling to pull your family together to create a working support system for someone living with dementia? Do you find family members disagreeing on what needs to be done or how to help? You're not alone, and there's a path forward.

    We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer's and other types of dementia, we've learned that transforming family dynamics into effective teamwork is one of the most challenging—yet most rewarding—aspects of the caregiving journey.

    In this episode, we spoke with Dr. Barry Jacobs, a clinical psychologist and family therapist who brings both professional expertise and personal caregiving experience to this conversation. Barry cared for his mother with vascular dementia and his stepfather with Alzheimer's disease for seven years, and he co-authored the AARP Caregiver Answer Book with his wife, psychologist Julia Mayer.

    This content aligns with Step 8 of our Navigating Dementia Caregiving Roadmap: Start Planning for the Next Stage of Care, particularly when building your personal support network of family and friends.

    Connect with us and share your tips:


    Full Show Notes

    https://thecaregiversjourney.org/50-family-dynamics-in-caregiving-four-essential-tips-alzheimers-and-other-dementias/


    Additional Resources Mentioned

    Takeaways

    Transforming your family into an effective caregiving team isn’t easy. It’s worth the effort — not just for your loved one with dementia — but for every member of your family.

    These four tips provide a framework:

    1. Create consensus (everyone on the same page).
    2. Define an ongoing format for decision making (regular meetings with clear rhythm).
    3. Build a family caregiving plan (who does what and when).
    4. Plan to deal with conflict (don’t let disagreements become disrespectful).


  26. Navigating Death Related Responsibilities: Four Essential Tips / Alzheimer’s and Other Dementias

    29 minTemporada 2 · Episódio 49

    Do you know what you need to do immediately after your loved one passes? Many caregivers don't. Are you worried about missing important tasks or feeling overwhelmed by the sheer volume of administrative …

    Notas do episódio

    Do you know what you need to do immediately after your loved one passes? Many caregivers don't. Are you worried about missing important tasks or feeling overwhelmed by the sheer volume of administrative, financial, and legal responsibilities?

    We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer's and other types of dementia, we've navigated the challenging process of handling death-related responsibilities firsthand. Between us, we've experienced the loss of multiple loved ones and learned valuable lessons about what needs to be done and when.

    Connect with us and share your tips:

    Website: https://thecaregiversjourney.org/

    Donate: https://give.cornerstone.cc/thecaregiversjourney

    Instagram: https://www.instagram.com/thecaregiversjourney/

    Facebook: https://www.facebook.com/thecaregiversjourneys/

    Linkedin: https://www.linkedin.com/in/suearmstrongryan/, https://www.linkedin.com/in/nancytreaster/

    Email: [email protected], [email protected]


    Full Show Notes


    If you are following along with our 20 step Navigating Dementia Caregiving Roadmap guide this is part of Step 20. This is the first guide listed on our guides page.


    There are many things that can be done ahead of time. We covered these in podcast episode 30 - End of life preplanning and blog as well as in the matching worksheet you can find on our website in the guides section called ‘End of Life Service Worksheet’. Click here to get to the Guides page, scroll down to find the sheet.


    Tip 1: Prioritize these things immediately after death1.

    Tip 2: Move to this list within the first few days and weeks

    Tip 3: Over the next few weeks and months - manage their estate

    Tip 4: Focus on the things to prioritize once the estate has been closed

  27. Are You Part of the Sandwich Generation? Five Essential Tips / Alzheimer’s and Other Dementias

    20 minTemporada 2 · Episódio 48

    Are you feeling overwhelmed trying to care for aging parents while raising children? Do you find yourself stretched thin between different generations, each with their own unique needs? My name is Sue Ryan. As …

    Notas do episódio

    Are you feeling overwhelmed trying to care for aging parents while raising children? Do you find yourself stretched thin between different generations, each with their own unique needs?


    My name is Sue Ryan. As a caregiver for loved ones with Alzheimer’s and other types of dementia, I understand the unique challenges faced by those in the sandwich generations. I recently spoke with Christy Byrne Yates, a licensed educational psychologist and author of “Building a Legacy of Love: Thriving in the Sandwich Generation.” Christy has personally navigated the challenges of caring for aging parents while raising her own children, and she brings both professional expertise and lived experience to help families thrive during this demanding season of life.

    Connect with us and share your tips:


    Full Show Notes


    Additional Resources Mentioned


    Takeaways

    Tip 1: C — Choose Your Role as a Caregiver

    The first step in successfully navigating the sandwich generation is making a conscious choice to embrace your caregiving role. Many people say “I didn’t choose this.” or “I had no choice.” We always have a choice. Even not making a choice is still a choice.


    Tip 2: A — Address the ‘Elephants’ in the Room

    Successful sandwich generation caregiving requires having difficult conversations early and often. These are the ‘elephants’ dancing in every family room that everyone sees — but no one wants to discuss.


    Tip 3: R — Recharge Through Ruthless Self-Care

    Recharging takes on critical importance when you’re caring for multiple generations. Self-care isn’t selfish — it’s essential for everyone you’re caring for.


    Tip 4: E — Enlist Your Support Team

    You’re not meant to journey alone, and this is especially true for sandwich generation caregivers who face multiple competing demands. Building a comprehensive support team is essential for sustainable caregiving.


    Tip 5: S — Surrender Control and Embrace Grace

    Perhaps the most challenging aspect of sandwich generation caregiving is accepting that you cannot control everything, even though you desperately want to. If everyone could just do things your way, life would be so much easier — but that’s not reality.


    Read More in This Blog here

  28. Navigating Grief Throughout Caregiving: Six Essential Tips / Alzheimer's and Other Dementias

    26 minTemporada 2 · Episódio 47

    Have you noticed yourself feeling sad when your loved one can't remember their phone number? Do you find yourself withdrawing from friends or losing patience more easily? These feelings might be grief—and you …

    Notas do episódio

    Have you noticed yourself feeling sad when your loved one can't remember their phone number? Do you find yourself withdrawing from friends or losing patience more easily? These feelings might be grief—and you may not even realize it's happening.

    We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer's and other types of dementia, we've learned that grief doesn't only come after our loved one passes away. It's present throughout our entire caregiving journey, from the moment of diagnosis through each individual change along the way.

    The good news is that understanding grief—recognizing it, honoring it, and learning to move through it without getting stuck—can transform how we experience our caregiving journey. Today we're sharing six essential tips to help you navigate grief with grace and compassion.

    Connect with us and share your tips:


    Full Show Notes

    https://thecaregiversjourney.org/47-navigating-grief-throughout-caregiving-six-essential-tips-alzheimers-and-other-dementias/

    Additional Resources Mentioned

    Takeaways


    Read More in This Blog here

  29. Navigating Dementia Caregiving Roadmap: Later On Steps 18-20 / Alzheimer’s and Other Dementias

    17 minTemporada 2 · Episódio 46

    Have you reached the point where you're now fully responsible for your loved one's care and safety? Do you find yourself guiding others or managing all aspects of their daily needs? You've entered what we call …

    Notas do episódio

    Have you reached the point where you're now fully responsible for your loved one's care and safety? Do you find yourself guiding others or managing all aspects of their daily needs? You've entered what we call "later on"—the final stage of the caregiving journey, and while some aspects may feel more manageable, new challenges and emotions emerge that require specific attention and planning.


    This final phase completes our comprehensive 20-step roadmap for dementia caregiving, covering the essential steps when you've moved beyond the messy middle into full caregiving responsibility.


    Connect with us and share your tips:

    Website: https://thecaregiversjourney.org/

    Instagram: https://www.instagram.com/thecaregiversjourney/

    Facebook: https://www.facebook.com/thecaregiversjourneys/

    Linkedin: https://www.linkedin.com/in/suearmstrongryan/, https://www.linkedin.com/in/nancytreaster/

    Email: [email protected], [email protected]


    Guide: Navigating Dementia Caregiving Roadmap https://thecaregiversjourney.org/guides/

    Donate: https://give.cornerstone.cc/thecaregiversjourney

    Full show notes

    Additional Resources Mentioned

    Later On - You are now managing all aspects of their care

    18. Plan for their End of Life Service:

    19. Call in hospice.

    • If you are not working with palliative care or a US Medicare GUIDE program organization (both of these are able to tell you when it’s time to call in hospice)
    • Find a hospice organization.
    • Get a doctor's referral.
    • Schedule an initial evaluation. It’s almost never too early to get the initial evaluation, so don’t wait.
    • Search ‘hospice’ + ‘your country’ - or in the US - ‘your state’. Scroll down until you get below the sponsored links where it says ‘Places’:
    • Click on ‘More places’ to get a list with a map.
    • Notice rating stars and those located around your area.
    • Schedule an initial consultation with two so you can compare.
    • Educate yourself on when to call in hospice:
    • 26 minute TCJ podcast: 29. When To Call In Hospice
    • TCJ blog: 29. When To Call In Hospice.

    20. Continue your self-care. Learn about Anticipatory Grief.

    • Read this AARP article:
    • How To Manage Mourning a Loss Before It Happens.
    • Honor your grief, be compassionate with yourself, reach out for support:
    • Each of us navigates the loss of our loved one in our own time and way.
    • It’s reasonable when your caregiving journey ends you may feel any or all of:
    • A sense of relief because your journey has ended and your loved one is no longer suffering,
    • Guilty at the same time because you feel relieved.
    • A loss of your own identity, from prioritizing your loved one for so long.
    • Not sure what to do next.
    • If you feel lost, reach out to your family, support group, faith community, friends, professionals. Most importantly - reach out!



    Takeaways

    The Three Stages of the Dementia Caregiving Journey

    • 1. In the Beginning - Your loved one receives a diagnosis.
    • 2. The Messy Middle - You begin asserting control; this is when it gets messy!
    • 3. Later On - You are managing all aspects of their care.

  30. Navigating Dementia Caregiving Roadmap: Messy Middle Steps 11-17 / Alzheimer’s and Other Dementias

    29 minTemporada 2 · Episódio 45

    Have you moved beyond the initial steps of your caregiving journey and now find yourself needing to take more control while your loved one still believes they can do most things independently? Are you noticing …

    Notas do episódio

    Have you moved beyond the initial steps of your caregiving journey and now find yourself needing to take more control while your loved one still believes they can do most things independently? Are you noticing that simple tasks are becoming increasingly challenging for them, yet they resist your help? You’re not alone! You’ve entered what we call the “messy middle” stage of your caregiving journey.

    We created for you the comprehensive, 20-step caregiving journey roadmap guide, Navigating Dementia Caregiving Roadmap

    Connect with us and share your tips:


    Full Show Notes

    Additional Resources Mentioned

    Messy Middle

    First Steps - You recognize it’s time to assert more control

    11. Focus on safety.

    12. Continue to prioritize your self-care.

    13. Educate yourself on activities of daily living (ADLs).

    14.Create a Care Plan - at minimum a Family Emergency Plan.


    Messy Middle - Continued

    Second Steps - It’s time for more support

    15. Start or increase leveraging dementia/adult day programs.

    • Community resource finder:
    • Select Community Services and choose Adult Day Centers for your search.

    16. Start thinking about professional help.


    17. Continue your education.


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