2 Parkies in a Pod: a Parkinson’s Podcast
- Folgen
- 71
- Erscheint
- monatlich
- Letzte Folge
- 7. Nov. 2026
Über den Podcast
If you want to know more about Parkinson's, or how to cope with chronic illness, then this is the Podcast for you. Between them Clarky and Kuhan have been living with Parkinson’s for more than 20 years. They chat openly and honestly about the challenges and even the benefits of living with the condition.
Folgen 71
Dyskinesia or Dystonia?
In this episode of 2 Parkies in a Pod, we go transatlantic as Dr Rachel Dolhun from The Michael J. Fox Foundation joins us. Rachel is a movement disorder neurologist and the foundation’s principal medical …
Shownotes
In this episode of 2 Parkies in a Pod, we go transatlantic as Dr Rachel Dolhun from The Michael J. Fox Foundation joins us. Rachel is a movement disorder neurologist and the foundation’s principal medical adviser.
She explains what dystonia and dyskinesia are, how to tell the difference between the two and strategies to treat.. including the use of sensory tricks.
Plus - Kuhan tells why he’s been a bit under the weather and Dave explores his family tree…
https://www.michaeljfox.org/
https://www.michaeljfox.org/news/dyskinesia
https://www.michaeljfox.org/news/dystonia
https://www.parkinsons.org.uk/information/drugs/side-effects/movement-changes#dyskinesia
https://www.parkinsons.org.uk/information/symptoms/motor/muscle-cramps-dystonia
If you enjoyed this episode please subscribe, rate and review
www.2parkiesinapod.com
Understanding ON/OFF
In this episode of 2 Parkies in a Pod, we’re talking about one of the most frustrating and sometimes confusing parts of living with Parkinson’s - ON and OFF periods.What does it actually mean to be “ON”? What …
Shownotes
In this episode of 2 Parkies in a Pod, we’re talking about one of the most frustrating and sometimes confusing parts of living with Parkinson’s - ON and OFF periods.
What does it actually mean to be “ON”? What does being “OFF” feel like? And why can Parkinson’s symptoms sometimes seem to change throughout the day?
We’re joined by Professor Camille Carroll, Professor of Clinical Neuroscience at Newcastle University, whose work focuses on Parkinson’s, personalised care, digital monitoring and motor fluctuations, including “wearing-off.”
Please remember that the podcast is not a substitute for individual medical advice. If you’re experiencing changes in your Parkinson’s symptoms or medication response, speak to your Parkinson’s team or healthcare professional.
https://www.parkinsons.org.uk/research/get-involved
https://www.ejsactpd.com/
https://www.researchplusme.co.uk/join-parkinsons-research/
Please subscribe, rate & review
Family Ties
Having witnessed her younger brother being diagnosed with Parkinson’s at the age of just 20, Anne had seen Parkinson’s first hand - but in a cruel twist of fate she was herself diagnosed more than 30 years …
Shownotes
Having witnessed her younger brother being diagnosed with Parkinson’s at the age of just 20, Anne had seen Parkinson’s first hand - but in a cruel twist of fate she was herself diagnosed more than 30 years later. How they have both dealt with their diagnosis is a truly inspiring story.
Listen in for a powerful conversation about family, resilience, exercise, friendship and finding a positive way forward with Parkinson’s.
Plus Dave gets an unexpected visitor...
Richard Brocklesby Sailing Fundraiser
https://gofund.me/704a90bee
Walkies for Parkinson's
https://events.parkinsons.org.uk/event/walkies-for-parkinsons/home
Par-Con 2026
https://www.parkinsons.org.uk/community/par-con
Submit your video questions for Par-Con 2026 at [email protected]
I don’t have Parkinson’s after all
What happens when you’re told you have Parkinson’s — and years later, you’re told you don’t?Mike Bells talks about the first signs, how the diagnosis affected both him and those around him, and the impact the …
Shownotes
What happens when you’re told you have Parkinson’s — and years later, you’re told you don’t?
Mike Bells talks about the first signs, how the diagnosis affected both him and those around him, and the impact the Parkinson’s medication had. Then came the shock.. Mike was de-diagnosed almost a decade later.
Mike opens up about what it felt like to discover the news and what life looks like now.
Plus, Dave hits 60… and Kuhan gets back behind the wheel!
Mike Bell Maps
Par-Con 2026
https://www.parkinsons.org.uk/community/par-con
Parkinson’s UK Nurse Appeal
https://www.parkinsons.org.uk/donate/parkinsons-uk-nurse-appeal/our-bbc-radio-4-appeal
Parkinson’s UK Walk Battersea Park 5th Sept 2026
https://events.parkinsons.org.uk/event/walk-parkinsons
Cure Parkinson’s Walk Battersea Park
https://cureparkinsons.org.uk/events/walk-to-cure-parkinsons-the-london-walk/
Please subscribe, rate & review
When is the Right Tme for DBS?
Guest: Dr Ashwini OswalFor many people living with Parkinson’s, Deep Brain Stimulation (DBS) is one of the biggest treatment decisions they’ll ever face. But when is the right time to start thinking about it? …
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Guest: Dr Ashwini Oswal
For many people living with Parkinson’s, Deep Brain Stimulation (DBS) is one of the biggest treatment decisions they’ll ever face. But when is the right time to start thinking about it? Should DBS be viewed as a last resort, or could earlier intervention offer greater benefits?
In this episode of 2 Parkies in a Pod, we’re joined by Dr Ashwini Oswal, Honorary Consultant Neurologist at the John Radcliffe Hospital in Oxford. His clinical work and research focus on Parkinson’s disease, Deep Brain Stimulation and the next generation of adaptive DBS technology.
Together, we unpack the evidence behind DBS, explain how it works, discuss who is most likely to benefit, and explore whether the 5-2-1 rule is a useful guide for referral. We also talk about the role of medications such as Entacapone, Opicapone & Amandatine, ask whether DBS could one day prove to be neuroprotective, and look ahead to the exciting future of adaptive DBS.
https://www.parkinsons.org.uk/information/treatments/deep-brain-stimulation
How to get involved in table Tennis
https://tabletennisengland.co.uk/news/2025/table-tennis-england-and-parkinsons-uk-announce-partnership/
The advert that made Dave Cry
https://www.youtube.com/watch?v=-GEpT3e7Dfg
Please rate, review and subscribe
2parkiesinapod.com
How close are we to a cure?
Guest: David Dexter, Director of Research, Parkinson’s UKThere’s a real sense of optimism in Parkinson’s research right now! In this episode we’re asking whether we’re closer than ever to treatments that can …
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Guest: David Dexter, Director of Research, Parkinson’s UK
There’s a real sense of optimism in Parkinson’s research right now! In this episode we’re asking whether we’re closer than ever to treatments that can slow, stop, or even reverse the disease.
David Dexter joins us to discuss exciting developments including breakthrough stem cell research, the promising results from a drug called Syntara, why reducing brain inflammation could be a game changer, and how Parkinson’s UK decides which research to back.
We also chat to Yorkshireman Andy Cassy who’s had millions of Stem Cells “planted” in his brain. Two years on from his 12 hour operation, is it working?
We also explore whether stress affects Parkinson’s, if an apple a day really can help keep the neurologist away, the science behind fatigue and NAD+ a cheap energy boosting supplement
We finish with a fun quick-fire round to discover the person behind the scientist.
Plus- how Dave managed to skip into Wimbledon for semifinals day.
Parkinson’s UK Research
https://www.parkinsons.org.uk/research
Par-Con 2026
https://www.parkinsons.org.uk/community/par-con
Symprove
https://shop.parkinsons.org.uk/pages/partner-symprove
NAD+
Why am I so tired?
https://www.2parkiesinapod.com/podcast/episode/223d81c7/why-am-i-so-tired
Ask the professor
https://www.2parkiesinapod.com/podcast/episode/2da15954/ask-the-professor
Please subscribe, rate & review
12 Amazing People
This episode celebrates some of the incredible people making a difference in the Parkinson’s community through creativity, courage, sport, music and innovation.Meet wildlife photographer, filmmaker and now …
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This episode celebrates some of the incredible people making a difference in the Parkinson’s community through creativity, courage, sport, music and innovation.
Meet wildlife photographer, filmmaker and now gardener David Plummer, one of the talented people who helped Arit Anderson create the stunning Parkinson’s UK Garden at the Chelsea Flower Show:
https://www.instagram.com/davidplummerimages
Kuhan reflects on his DBS 1 year on with DBS specialist nurse John:
https://youtu.be/gCkyRdcNgbg
Ciaran and Lucy share their remarkable story of cycling around the world to raise money and awareness for Parkinson’s:
https://www.instagram.com/ciarandoesthings_
FA Cup Final Ian Moorehouse:
https://www.youtube.com/watch?v=zwus8-XDxMY
Rock Choir - over 400+ local choirs across the UK and Ireland:
https://rockchoir.com/
BURT - The Movie:
https://www.joeburke.net/burt
Ever fancied appearing in a film? A former Coronation Street actor explains how you could become a star of the silver screen:
https://www.instagram.com/108a_films
Sam reveals how he’s using artificial intelligence to help compose, create and produce new music:
https://www.instagram.com/samuelsmithmusic
And two Emmas tell us all about a festival designed especially for Parkies:
https://bigskyhideaway.com/parky-in-the-park
Twelve amazing people with inspiring stories. One uplifting episode celebrating the people who are making a real difference in the Parkinson’s community.
Plus Dave tries out a expiratory muscle strength trainer:
https://www.cuh.nhs.uk/patient-information/expiratory-muscle-strength-training-emst/
https://www.amazon.co.uk/EMST150-Expiratory-Muscle-Strength-Trainer/dp/B0094ME5BA
Please rate, review and subscribe!
Flower Power
In this special episode, Dave and Kuhan head to the world-famous RHS Chelsea Flower Show to explore one of the most moving and meaningful gardens of the year: Parkinson’s UK’s Garden for Every Parkinson’s …
Shownotes
In this special episode, Dave and Kuhan head to the world-famous RHS Chelsea Flower Show to explore one of the most moving and meaningful gardens of the year: Parkinson’s UK’s Garden for Every Parkinson’s Journey.
We’re joined by acclaimed garden designer and broadcaster Arit Anderson, who shares the deeply personal story behind the garden she created. Arit opens up about her family’s connection to Parkinson’s, how that experience- and the experiences of the Parkinson’s community - shaped the design, and why gardens can become spaces for reflection, resilience and hope.
Plus we meet Raymond the Chelsea Pensioner with Parkinson's
Tech Trouble & Triumph
This week 2 Parkies in a Pod chat to former BBC technology correspondent Rory Cellan-Jones - a man who’s interviewed the likes of Steve Jobs and Elon Musk. He’s a Mover and Shaker launching an award-winning …
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This week 2 Parkies in a Pod chat to former BBC technology correspondent Rory Cellan-Jones - a man who’s interviewed the likes of Steve Jobs and Elon Musk. He’s a Mover and Shaker launching an award-winning podcast, and is now one of the most important voices on tech and Parkinson’s.
He talks about his career at the BBC, his Parkinson’s diagnosis and the pros & cons of Tech.
Plus - The latest on Sophie the Romanian rescue dog, Dave gets hacked and Kuhan experiments with voice cloningLinks
https://rorycellanjones.substack.com/
https://www.moversandshakerspodcast.com/
Wispr Flow voice to text special offer
What Type of Parkinson's Do I Have?
What type of Parkinson’s do I have? Featuring Prof Alastair NoyceYou’ve heard it a hundred times: “everyone’s Parkinson’s is different.” But what does that actually mean?In this episode, we unpack the main …
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What type of Parkinson’s do I have?
Featuring Prof Alastair Noyce
You’ve heard it a hundred times: “everyone’s Parkinson’s is different.” But what does that actually mean?In this episode, we unpack the main subtypes of Parkinson’s and what sets them apart clinically. Are you tremor-dominant or more rigid and stiff? Have you lost your sense of smell? How does young-onset progress? And in this clip we discuss if having a genetic type means your children will inherit Parkinson’s ? To help make sense of it all, we’re joined by one of the leading minds in the field: Professor Alistair Noyce, clinician, researcher, and a driving force at the cutting edge of Parkinson’s science.
Elsewhere, Kuhan boards a plane to Spain for the first time since his brain surgery, while Dave heads to the Yorkshire coast in search of puffins. And we spotlight a powerful awareness campaign - the “rose without a smell”- highlighting one of Parkinson’s lesser-known symptoms.Listen and follow at 2parkiesinapod.com or on Spotify / Apple Podcasts
Parkinson's Resilience Rose
https://www.roses.co.uk/product/780299/rose-parkinsons-resilience-4l-pot-ngw
PD Frontline (Genetic Testing)
https://mantal.pdfrontline.com/en
EJS ACT-PD Trial
https://www.ejsactpd.com/
Parkinson's UK Get Involved in Research
https://www.parkinsons.org.uk/research/get-involved/take-part-hub
Pump It Up
We take a look at the use of pump technology (Produodopa) in battling the symptoms of Parkinson’s..A small pump delivers a continuous dose of medication under the skin through a small needle.How will it improve …
Shownotes
We take a look at the use of pump technology (Produodopa) in battling the symptoms of Parkinson’s..
A small pump delivers a continuous dose of medication under the skin through a small needle.
How will it improve 'off' periods ?
How difficult is it to manage the pump and change the infusion site?
Can you lead a normal life with it?
Parkinson’s patients Anna Jewell and Helga McFarlane together with 'Professor AI' tell us the pros and cons of pumping it up!
Plus- Find out what happened when Kuhan turned off his DBS to play tennis…
Dave starts his brain surgery journey…
And Billy Connolly gets a new job as a museum tour guide…
More information
https://www.parkinsons.org.uk/information/drugs/produodopa
Political Football
We’re hitting a milestone-Episode 60- and marking it in style. In this special instalment of 2 Parkies in a Pod, Dave and Kuhan swap the studio for the pitch as they attend a truly unique football match. On one …
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We’re hitting a milestone-Episode 60- and marking it in style.
In this special instalment of 2 Parkies in a Pod, Dave and Kuhan swap the studio for the pitch as they attend a truly unique football match. On one side: the England Men’s Parkinson’s Walking Football team. On the other: a team of MPs from the All-Party Parliamentary Group.
But this isn’t just about goals and glory.
This match shines a spotlight on something bigger- the powerful role exercise can play in living well with Parkinson’s. It’s about movement, resilience, and proving that diagnosis doesn’t mean standing still.
And where better to make that statement than right at the heart of power?
Adding to the occasion, the team also received a letter from Prime Minister Keir Starmer, praising the day and recognising the importance of raising awareness and championing the Parkinson’s community.
With boots on the ground and voices raised, this episode captures a moment where the Parkinson’s community takes its message straight to the highest table in the land-loud, proud, and impossible to ignore.
Plus we take a trip down memory lane, talk about gut health and Dave's unexpected visitor for breakfast !
⚽ Movement is medicine.
Please do subscribe, rate and review the podcast.
Symprove Gut Health
https://shop.parkinsons.org.uk/pages/partner-symprove
Padel for Parkinson's
https://www.instagram.com/Padel4Parkinsons
Billy Connolly Art
https://www.castlefineart.com/products/a-chat-at-the-gym
Alex Echo Art
Sex, Shopping & Gambling - Out of Control
Sex, Shopping & Gambling - Out of ControlThis week on 2 Parkies in a Pod, we uncover the darker side of dopamine agonists — a group of Parkinson’s drugs that, for some people, have triggered devastating …
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Sex, Shopping & Gambling - Out of Control
This week on 2 Parkies in a Pod, we uncover the darker side of dopamine agonists — a group of Parkinson’s drugs that, for some people, have triggered devastating impulsive behaviours.
Sudden, overwhelming sexual urges, out-of-control gambling and compulsive shopping that’s cost families tens of thousands of pounds.
We speak to BBC Investigative Reporter Noel Titheradge, who spent a year investigating the link between these medications and impulse control disorders. His documentary 'Impulsive’ for the BBC’s Radio 4 Shadow World series exposed stories that are hard to ignore.
You’l also hear from:
- Ellie, who lost more than £50k to online gambling
- Steve, who became addicted to adult webcam sites and spent £40k
- A solicitor who stole £600k from clients to fund a secret double life
How common are these side effects?
Are patients warned clearly enough?
And should drug companies be doing more?
If you or someone you love has been affected, help is available.
📞 Parkinson’s UK free confidential helpline: 0808 800 0303
Parkinson’s UK Impulsive Control Disorders
https://www.parkinsons.org.uk/about-us/our-views/impulsive-compulsive-behaviour
BBC Impulsive Series
https://www.bbc.co.uk/programmes/m001zlz0
Contact Noel: [email protected]
Yellow Card Reporting Side Effects
https://yellowcard.mhra.gov.uk/
Ellie’s Blog
https://pdmamablog.wordpress.com/
Why Am I So Tired?
‘Why am I so tired?’ features occupational therapist Emma BracherResearch shows, fatigue is the most burdensome symptoms for people with Parkinson’s, yet it’s still one of the least talked about and least …
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‘Why am I so tired?’ features occupational therapist Emma Bracher
Research shows, fatigue is the most burdensome symptoms for people with Parkinson’s, yet it’s still one of the least talked about and least understood.
So what is Parkinson’s fatigue? What causes it? And is there anything we can do to live with it — or even prevent it?
This week on 2 Parkies, we’re joined by Emma Bracher, Specialist Occupational Therapist and founder of Bigger & Better, a fitness and wellbeing programme designed specifically for people with Parkinson’s.
Emma shares her expert insight into:
- What Parkinson’s fatigue really is (and why it’s more than “just being tired”)
- Why fatigue can be so debilitating
- Practical strategies to manage energy levels day-to-day
- How occupational therapy helps people with Parkinson’s improve their ability to carry out everyday tasks and stay independent
We also get to know Emma’s personal journey — having a dad who has Parkinson’s, to how a six-year adventure in Australia inspired her to become a healthcare professional. And because it wouldn’t be 2 Parkies without a bit of fun, we also discover how Emma’s husband has turned their garage into an unexpected shrine to darts 🎯
An honest, informative, and uplifting conversation about one of Parkinson’s toughest symptoms — with plenty of practical takeaways along the way.Links:
How can Occupational Therapy help me
Bigger and better
https://www.biggerandbetterforparkinsons.co.uk/
2 Parkies Bobble hats - use the code WarmFeb (up to 28/2) at checkout to receive 10% off any clothing
https://shop.parkinsons.org.uk/collections/parkinsons-uk-merchandise-1/2-parkies-in-a-pod
The Tremor-Loes Choir
https://m.youtube.com/playlist?list=OLAK5uy_n6FHxcvIQZTpv7mA4AObHQlpXg2Si5Exc
Larry 100 Marathons
https://secure2.convio.net/dpf/site/Donation2?mfc_pref=T&2720.donation=form1&df_id=2720
Skateboarding Parkie Phillip Brown
https://www.youtube.com/channel/UCulUIOyLhCDo8YnwRqSL77Q
The Shaking It Up Parkinson’s Podcast
https://shakingitupwithparkinsonspodcast.com/launch-trailer/
What Do My Meds Do?
Parkinson’s Medication Explained with Professor Jane Alty from the University of Tasmania.Parkinson’s meds can feel overwhelming. If you don’t know your Entacapone from your elbow, this is the Podcast for …
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Parkinson’s Medication Explained with Professor Jane Alty from the University of Tasmania.
Parkinson’s meds can feel overwhelming. If you don’t know your Entacapone from your elbow, this is the Podcast for you.
The professor cuts through the confusion — busting myths and jargon explaining what each medication actually does, and why treatment should always be personal. From first prescription to advanced therapies, this is a must-listen for anyone navigating Parkinson’s.
Key Topics:
- When is the right time to start Parkinson's medication? (and why waiting isn’t always better)
- Understanding the role of Levodopa and its brand vs. generic versions
- Why dosing isn’t one size fits all
- Managing motor fluctuations and dyskinesia with medication adjustments
- The function and timing of dopamine agonists and side effect considerations ..like risk of gambling
- Managing OFF time, fluctuations, and dyskinesia
- Dopamine agonists: benefits, risks, and side effects
- Pumps, DBS, and other device-assisted therapies
- Supplements like Macuna and CBD: hype vs evidence
- Why honest doctor–patient conversations change outcomes
- Resources including the Parkinson's MOOC for patients and carers
Parkinson’s UK Medication
https://www.parkinsons.org.uk/information/drugs
Parkinson’s MOOC (massive open online course)
https://mooc.utas.edu.au/course/20392
Parkinson’s Weekly Prof Bas Bloem (talking about Amandatine)
https://oruen.com/category/podcasts/parkinson-weekly
Megan’s Yogathon for Parkinson’s UK
https://www.justgiving.com/page/megan-jones-1764255759495?utm_medium=FR&utm_source=CL
Anders M. Leines ‘This is Parkinson’s’
https://www.detteerparkinson.no/en/media
Emma Lawton ‘The Bendy Pencil’
https://www.crowdfunder.co.uk/p/thebendypencil
Miracle grandfather battling Parkinson's, 74, survives 60m mountain fall
https://www.express.co.uk/news/uk/2161180/grandfather-battling-parkinsons-survives-60/amp
Seasons Greetings
Season's Greetings from 2 Parkies in a Pod ! Dave and Kuhan get in the festive spirit as they open the postbag and share some truly inspiring stories from the community ..including the challenges of running a …
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Season's Greetings from 2 Parkies in a Pod !
Dave and Kuhan get in the festive spirit as they open the postbag and share some truly inspiring stories from the community ..including the challenges of running a nuclear power plant with Parkinson's, more remarkable DNA stories and we hear from friends.. old and new.Plus 2 Parkies in a Pod receives its own community award !
As always - honest conversations, real lives, and a bit of festive cheer along the way…
We hope you have a wonderful Christmas and a Happy New Year!Please rate, review and subscribe!
2parkiesinapod.com
Coming Out
Many people living with Parkinson’s struggle to talk about their diagnosis. Fear, stigma, and uncertainty can keep people silent for years. Even Michael J. Fox kept his Parkinson’s diagnosis private for almost …
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Many people living with Parkinson’s struggle to talk about their diagnosis. Fear, stigma, and uncertainty can keep people silent for years. Even Michael J. Fox kept his Parkinson’s diagnosis private for almost a decade.
This week on 2 Parkies in a Pod, we meet Scott and Paul, who share powerful, deeply personal coming out stories — not just about Parkinson’s, but about identity, isolation, and finding the courage to be seen.
Paul reflects on how closely his Parkinson’s journey mirrored his experience of coming out as gay:
“I guess I dealt with Parkinson’s in the same way I dealt with realising I was gay… by not talking to anyone about it for many years"
Scott speaks honestly about living with Parkinson’s while single, gay, and without family support:
“Being single, gay, with no family support, I did feel very isolated — and there weren’t many people I could see in the community that I had anything in common with.”
In one of the episode’s most raw moments, Scott also opens up about experiencing suicidal thoughts and explains how the helplessness he felt during tests for deep brain stimulation treatment resurfaced memories of past sexual abuse. His honesty shines a light on the complex mental health challenges faced by many people with Parkinson’s — challenges that often remain unspoken.
This is a story about vulnerability, survival, and connection. A story of adversity, community and ultimately ...gratitude.
Parkinson’s and The Invisible Man (Scott’s YouTube channel)
https://www.youtube.com/@Parkinsonsandtheinvisibleman
Parkinson’s UK Mental Health
https://www.parkinsons.org.uk/information/symptoms/behavioural/mental-health
Podcast Club
https://localsupport.parkinsons.org.uk/activity/young-onset-parkinsons-online-group
LGBTQIA+ Network
https://localsupport.parkinsons.org.uk/activity/lgbtqia-network-meeting-online
DBS Network
https://forms.gle/ApDHqGaDF38n6wYa7
Join our yoga group
https://dawnwilliamsyoga.co.uk
1 in 3 living alone research insights
Par-Con 2025 mental health video
Hear Me charity
https://www.parkinsons.me/hearme
Nutrition PD
Please rate, review and subscribe to the podcast
Contact us at:
Lucy’s Genetic Journey: My Amazing Parkinson’s Story
In this episode, we meet Lucy (not her real name), who shares her extraordinary Parkinson’s journey.Lucy discovered she has a genetic form of Parkinson’s known as LRRK2. What started as a simple Ancestry DNA …
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In this episode, we meet Lucy (not her real name), who shares her extraordinary Parkinson’s journey.
Lucy discovered she has a genetic form of Parkinson’s known as LRRK2. What started as a simple Ancestry DNA test to explore her family roots soon led to life-changing revelations — uncovering far more than she ever expected.
Before releasing this episode, we sought advice from Lucy’s counsellor, and we’ve taken every step to protect the privacy of everyone involved in this remarkable story.
If you’ve been affected by the topics discussed, or want to learn more about genetic Parkinson’s, you can contact the Parkinson’s UK Helpline for confidential advice and support:
📞 0808 800 0303
Donor Conceived Support
https://donorconceiveduk.org.uk (peer led support)
https://www.uhliverpool.nhs.uk/services/service-finder/donor-conceived-register (national register)
EJS ACT PD Get Involved
Watch 2 Parkies at Par-Con
Neuro Heroes
https://www.neuroheroes.co.uk/
Parkinson’s Europe Work Survey
Parkinson’s UK Nurse appeal
https://www.parkinsons.org.uk/donate/donate-great-care
Neuralink
Live from Par-Con: Rise & Shine
10 Tips for a Better DayYou can watch this episode at:https://youtu.be/H7IFQfcp2osIn this special live episode from Parkinson’s UK’s Par-Con event in Birmingham, Kuhan and Dave are joined by a buzzing audience …
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10 Tips for a Better Day
You can watch this episode at:
In this special live episode from Parkinson’s UK’s Par-Con event in Birmingham, Kuhan and Dave are joined by a buzzing audience of more than 1000 people in person and online and the incredible Laura Douglas, neuro physiotherapist and founder of Neuro Heroes.Laura shares her expert advice from getting out of bed, stretches for dystonia and tips for getting dressed.Packed with practical tips, uplifting moments, and plenty of fun, this episode will help you start and end each day feeling stronger, steadier, and more confident — no matter what.
Neuro Heroes Tips
Plus a couple of special announcements.
Subscribe to 2 Parkies in a Pod
Special Episode: Is Parkinson's on the Rise?
A new study published today reveals a worrying trend: there are now 166,000 people in the UK living with Parkinson’s but a further 21,000 are estimated to be undiagnosed.. and unsupported.The Parkinson's UK …
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A new study published today reveals a worrying trend: there are now 166,000 people in the UK living with Parkinson’s but a further 21,000 are estimated to be undiagnosed.. and unsupported.
The Parkinson's UK study, the largest of it's kind, also reveals more than a third (36%) were of working age when diagnosed.
Separately the number of people with a more complex form of Parkinsonism (e.g. Lewy Body Dementia, MSA, PSP) has increased to 28,000.
The study also finds stark differences in rates based on ethnicity.
Even more concerning, in some parts of the country people are waiting up to five years to see a neurologist. The charity has called it a “Parkinson’s diagnosis crisis.”
With someone in the UK diagnosed every 20 minutes, we ask: why are the numbers rising, what’s driving the crisis, and what needs to change?
Join us as we dig into the data, with 3 experts from Parkinson’s UK and explore what this means for the Parkinson’s community — now and for the future.
For more information:
Parkinson's UK News Article:
https://www.parkinsons.org.uk/news/thousands-are-living-parkinsons-undiagnosed-and-unsupported-our-new-research-finds
Read the Parkinson's UK Research Blog:
https://www.parkinsons.org.uk/research/research-blog/our-research/parkinsons-uk-what-do-we-know
Parkinson's UK Statistics:
https://www.parkinsons.org.uk/about-us/parkinsons-statistics
Research Paper:
https://movementdisorders.onlinelibrary.wiley.com/doi/10.1002/mdc3.70368
www.parkinsons.org.uk
UK Helpline 0808 800 0303
Join the Research Support Network:
https://www.parkinsons.org.uk/research/research-blog/our-research/parkinsons-uk-research-support-network
https://www.parkinsons.org.uk/research/race-equality-research
Join the Black, Asian, Arab and Mixed Heritage Support Group:
https://localsupport.parkinsons.org.uk/activity/black-asian-arab-and-mixed-heritage-support-group-meeting
Listen to Will I Die from Parkinson's:
https://www.2parkiesinapod.com/podcast/episode/1e8a6b26/will-i-die-from-parkinsons
https://ourfuturehealth.org.uk/
Call the Parkinson's Nurse
In this episode, we’re joined by specialist Parkinson’s nurse Becky Heslop, who recently starred in a film highlighting the vital role nurses play in supporting people living with Parkinson’s. Becky talks us …
Shownotes
In this episode, we’re joined by specialist Parkinson’s nurse Becky Heslop, who recently starred in a film highlighting the vital role nurses play in supporting people living with Parkinson’s.
Becky talks us through what a Parkinson’s nurse actually does, from being a key part of your care package, to offering advice, reassurance, and hands-on treatments. We hear about some of the more practical – and sometimes challenging – aspects of her work, including giving Botox injections and helping people manage the Produodopa pump.
Please consider donating to the Nurse appeal at:
https://www.parkinsons.org.uk/donate/donate-great-care
Episode 50 - The Best Bits!
We’ve hit a huge milestone – 50 episodes, and 2 Parkies in a Pod is celebrating in style!In this special edition, we take you back through some of our most memorable moments:✨ The inspiring Matt Eagles, who’s …
Shownotes
We’ve hit a huge milestone – 50 episodes, and 2 Parkies in a Pod is celebrating in style!
In this special edition, we take you back through some of our most memorable moments:
✨ The inspiring Matt Eagles, who’s been living with Parkinson’s for more than 50 years, shares how he stays positive.
✨ Professor Tom Foltynie answers your questions at Queen Square and explains how to prepare for your consultation.
✨ From Episode 20, Canadian broadcaster Harry Forestell tells us what it was like to meet Michael J Fox.
✨ Dementia expert Rimona Weil on why she fell in love with neuroscience.
✨ The Top 10 symptoms
✨ Plus - The moments when things didn’t go quite to plan – including that fit of the giggles!
You Can't Hide Your Parkinson's Forever
This week on 2 Parkies in a Pod, we’re joined by television producer and editor Rob Burley. Rob has worked with some of the biggest names in political journalism – from Jeremy Paxman to Andrew Marr, Laura …
Shownotes
This week on 2 Parkies in a Pod, we’re joined by television producer and editor Rob Burley. Rob has worked with some of the biggest names in political journalism – from Jeremy Paxman to Andrew Marr, Laura Kuenssberg to Emily Maitlis.
Diagnosed with Parkinson’s in 2021, Rob talks openly about his journey and the challenges of balancing a demanding career with the condition. We also discuss his fascinating book, Why Is This Lying Bastard Lying to Me?, which explores the history of political interviewing and shines a light on how the toughest questions shape public life.
Send us your voice notes at [email protected]
Rob's Blog:
https://unherd.com/2025/07/you-cant-hide-parkinsons-forever/
Rob's Book:
https://open.spotify.com/show/7KLaSpzKqS5x9fKKgLFMQj?si=ef8c8e47cf804fa7&nd=1&dlsi=80ebdbbb704d4d14
https://www.amazon.co.uk/Why-This-Lying-Bastard-Searching/dp/0008542481
Balls to Parkinson's Bike Ride:
https://ballstoparkinsons.co.uk/
Parkinson's UK Brain Bank:
https://www.parkinsons.org.uk/research/parkinsons-uk-brain-bank
Parkinson's UK Walk for Parkinson's 7th Sept :
https://events.parkinsons.org.uk/event/walk-parkinsons-battersea-park/home
Walk to Cure Parkinson's 28th Sept:
https://cureparkinsons.org.uk/get-involved/walk-to-cure/
Par-Con 2025 Parkinson's UK Community Convention 24/25 Oct:
https://www.parkinsons.org.uk/get-involved/par-con
Please rate, review & subscribe if you enjoy the show.
2 Parkies at the Brain Bank
Dave and Kuhan take you behind the scenes of the Parkinson’s UK Brain Bank at Imperial College London. They witness an incredible brain dissection led by a world-class neuropathologist — an unforgettable …
Shownotes
Dave and Kuhan take you behind the scenes of the Parkinson’s UK Brain Bank at Imperial College London. They witness an incredible brain dissection led by a world-class neuropathologist — an unforgettable experience.
Have you ever wondered how you can make a real difference to Parkinson’s research? Find out how you can donate your brain to science and help unlock the mysteries of this condition.
https://www.parkinsons.org.uk/research/parkinsons-uk-brain-bank
http://imperial.ac.uk/brain-bank
Find out if Kuhan’s DBS surgery has improved his tennis as the boys play their first post-surgery match….
Par-Con 2025 the Parkinson’s UK community convention, is our free, 2-day event for the Parkinson's community. Join us in-person or online for talks, activities and to connect with others.
https://www.parkinsons.org.uk/get-involved/par-con
AMAZING THINGS
Adam Roberts the author of The Amateur Gourmet has gone public about his Parkinson’s …
Every Silver Lining Has a Cloud - by Adam Roberts
https://amateurgourmet.substack.com/p/every-silver-lining-has-a-cloud
Jimmy Choi American Ninja
https://www.facebook.com/share/v/1ALSbWFLiW/?mibextid=wwXIfr
And we take a moment to pay tribute to fellow Parkie and rock legend Ozzy Osbourne, whose honesty and grit continue to inspire.
DBS Diaries
In this powerful episode, Kuhan takes us on an intimate journey through his life-changing deep brain stimulation (DBS) operation. From the moment he arrived at the hospital, through the intense experience of …
Shownotes
In this powerful episode, Kuhan takes us on an intimate journey through his life-changing deep brain stimulation (DBS) operation. From the moment he arrived at the hospital, through the intense experience of surgery, to the emotional moment the device was switched on. He opens up about the challenges, the breakthroughs, and how life has transformed since the procedure. It’s an honest, moving story of resilience, hope, and the impact of modern medicine.
Watch Kuhan's moment of DBS switch on
Parkinson's UK DBS information
Meet the Brain Surgeon
This episode is a big one for us. Kuhan is preparing to undergo Deep Brain Stimulation, or DBS — a life-changing surgery that could help manage his Parkinson’s symptoms. Joining us is a very special guest: a …
Shownotes
This episode is a big one for us. Kuhan is preparing to undergo Deep Brain Stimulation, or DBS — a life-changing surgery that could help manage his Parkinson’s symptoms. Joining us is a very special guest: a member of the surgical team who’ll be operating on his brain.
Harith Akram is a Consultant Neurosurgeon at the National Hospital for Neurology and Neurosurgery at Queen Square, London.
He tells us how he escaped from Saddam Hussein's regime in Iraq, started medical school at 16 and invented the equipment that’s going to drill a hole in Kuhan‘s head!!
He also tells us what to expect when you’re having deep brain stimulation.
It’s personal, it’s powerful… it’s 2 Parkies In A Pod
Links:
Getting the Balance Right
Balance in Parkinson’s is a complicated thing but the good news is, help is on hand. We talk to expert neuro physiotherapist Laura Douglas, co-founder of Neuro Heroes and an expert in gait and balance. An …
Shownotes
Balance in Parkinson’s is a complicated thing but the good news is, help is on hand. We talk to expert neuro physiotherapist Laura Douglas, co-founder of Neuro Heroes and an expert in gait and balance. An informative chat, packed full of great advice to make your Parkie life a little easier.
Neuro Heroes live classes over Zoom are for people based in the UK. People outside of the UK can follow along to these pre-recorded videos made with Parkinson's UK:
Low intensity workout with Neuro Heroes
Moderate intensity workout with Neuro Heroes
High intensity workout with Neuro Heroes
2 Parkies in a Pod Spotify playlist:
https://spotify.link/J7GX0gC40Tb
https://thewellsparkinsons.bandcamp.com/track/walk-with-me
An Interesting Detail by Kimberly Campanello:
https://guardianbookshop.com/an-interesting-detail-9781526680594/
Mime Over Mind by Barbara Salsberg Mathews:
https://mimeovermind.com/videos/
Catch Up
The boys are back after a short break. Kuhan shares his sleep secrets, Dave takes a tumble, Ryan Reynolds speaks out about his dad‘s Parkinson’s and Steph has a positive take on sleeping in separate bedrooms …
Shownotes
The boys are back after a short break. Kuhan shares his sleep secrets, Dave takes a tumble, Ryan Reynolds speaks out about his dad‘s Parkinson’s and Steph has a positive take on sleeping in separate bedrooms, plus the pain of a PIP review.
AbbVie sleep video
PD nurses attend St James palace event
https://www.bbc.com/news/articles/c2lzzjgvvw1o
Cure Parkinson’s ‘Question of Time’
Parkinson’s UK PIP Information
Parkinson’s UK PIP Campaign
https://www.parkinsons.org.uk/news/what-latest-disability-support-reforms-mean-people-parkinsons
Pavilion Dance South West
Lee Silverman Voice Treatment
https://www.parkinsons.org.uk/information-and-support/speech-and-language-therapy
Tom Finch Fundraising
https://www.justgiving.com/page/tom-hulme-1734256927282?utm_medium=FR&utm_source=CL&utm_campaign=015
Sports Parkinson's
https://www.sportparkinsons.com/
Ryan Reynolds Hallucinations video
https://www.moretoparkinsons.com/
Parkinson’s UK Helpline 0808 800 0303
Goodnight, G’day
Sleep problems can be a major issue when you have Parkinson’s. This week we talk to Jane Alty a professor of neurology at The University of Tasmania, Australia. She’s an expert in Parkinson’s sleep disorders …
Shownotes
Sleep problems can be a major issue when you have Parkinson’s. This week we talk to Jane Alty a professor of neurology at The University of Tasmania, Australia. She’s an expert in Parkinson’s sleep disorders. Her goal is to transform the brain health of adults globally - through research to detect the critical earliest stages of degenerative brain disorders.
She also reveals whether she thinks AI will solve the Parkinson’s conundrum.
Also this week.. The boys are full of the joys of spring, Kuhan nearly gets run over, Dave does a rap
And Hamming it up…. How a piece of Donald Trump ended up in a sandwich!
STEM-ing Parkinson's
In this episode we head to Scotland and the Centre for Regenerative Medicine, University of Edinburgh. We chat with Professor Tilo Kunath one of the world’s leading experts in stem cell research. The hope is …
Shownotes
In this episode we head to Scotland and the Centre for Regenerative Medicine, University of Edinburgh. We chat with Professor Tilo Kunath one of the world’s leading experts in stem cell research. The hope is that one day, implanted cells can reverse Parkinson’s. Just how close are we to that elusive cure? What’s happened to the people who’ve been given stem cells? How freezing cockroaches in his mum’s fridge kicked off his scientific career…
Getting Involved in Research
https://www.parkinsons.org.uk/research/get-involved-research
Deep Brain Stimulation
https://www.parkinsons.org.uk/information-and-support/deep-brain-stimulation
Dave’s new shoes
https://www.nike.com/gb/easyon
Amazing Things
Ozzie Osbourne / Black Sabbath mega gig
Aloha to Island living Lisa on Insta
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