On the tip of my tongue – talking about Aphasia
- Folgen
- 38
- Erscheint
- monatlich
- Letzte Folge
- 27. Okt. 2026
Über den Podcast
Jonathan Hirons's journey following his stroke and diagnosis of aphasia is both inspiring and informative. Here’s a summary of his experience and insights about aphasia:
Jonathan's Experience with Aphasia
1. Initial Incident:
In January 2019, while in a business meeting, Jonathan began to feel strange and soon realized he could not communicate effectively. His colleagues quickly called for medical help.
2. Medical Emergency:
He was rushed to University College Hospital, where scans revealed he had suffered a stroke due to a bleed on the brain. He spent five nights in the hospital and was diagnosed with aphasia.
3. Impact on Daily Life:
- Jonathan struggled with basic tasks such as speaking, reading, and writing.
- He had memory issues, recalling only his postcode but not his full address or other personal information.
- He faced challenges in understanding spoken language but could still sign his name.
4. Support from Family:
His wife, Ann, played a crucial role in his recovery:
- She encouraged him to read aloud daily and used flashcards to aid in word recognition and writing.
- This early intervention was vital for his rehabilitation.
5. Progress Through Therapy:
With the help of speech therapy, Jonathan made significant improvements:
- He regained much of his ability to read and write, although he still experiences difficulties, especially when tired.
6. Advocacy and Awareness:
- Jonathan has turned his experiences into a creative outlet by producing films, including "On the Tip of My Tongue" and "What is Aphasia?" These films aim to educate others about aphasia and its challenges.
- He actively shares his story to raise awareness about aphasia as a hidden disability and the ongoing need for support beyond initial rehabilitation.
Understanding Aphasia
Aphasia is a language disorder that affects communication abilities, including:
- Speaking: Difficulty in forming words or sentences.
- Understanding: Challenges in comprehending spoken or written language.
- Reading and Writing: Problems with reading text or writing coherently.
Key Takeaways
- Aphasia is often a result of brain damage, commonly from strokes, and can significantly impact daily life.
- Early intervention and support are crucial for recovery.
- Awareness and education about aphasia can help reduce stigma and improve support for those affected.
Jonathan's story highlights the resilience of individuals facing such challenges and the importance of community support in their recovery journey.
Copyright © 2025 Jonathan Hirons/Buffalo Lounge Studios All Rights Reserved.
This film/video/podcast is protected by copyright law. Unauthorized reproduction, distribution, or transmission of this material is prohibited.
For permissions or inquiries, please contact [email protected]
Mitwirkende
- Jonathan HironsModeration
- Rob EdwardsModeration
Folgen 38
United by Words: Discovering the Living with Aphasia Conference April 18-19 2027
Mit Andy Hopkins, Dr Abi Roper, Rosemary Townsend und Suzie Cope
Send us Fan MailOn the Tip of My Tongue: Living With Aphasia Conference 2027 PreviewGuests Abi Roper and Rosemary Townsend (speech and language therapists and researchers), alongside committee members Suzie …
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On the Tip of My Tongue: Living With Aphasia Conference 2027 Preview
Guests Abi Roper and Rosemary Townsend (speech and language therapists and researchers), alongside committee members Suzie Cope and Andy Hopkins (both living with aphasia), discuss the UK “Living with Aphasia” conference, first held in 2017 and supported by the Tavistock Trust for Aphasia. The 2027 in-person conference (18–19 April, University of Warwick) is designed to be aphasia-friendly and focused on people with aphasia, with optional partner/carer guests, featuring talks by people with aphasia, practical workshops (including technology), creative and music sessions, quiet spaces, shared meals, and on-site accommodation; details and booking are at ukaphasia.org.
00:00 Why Community Matters
00:30 Podcast Intro and Aphasia Basics
01:24 Meet the Conference Team
02:50 How the Conference Began
03:44 Living With Aphasia 2027 Overview
04:01 Who the Conference Is For
06:02 What Happens at the Event
07:17 Susie on the Social Side
08:17 Beyond Speech Numbers and Reading
09:38 Workshops Tech Tips and Tools
11:29 Aphasia Friendly Design and Creative Sessions
14:06 Two Day Schedule and What to Expect
15:02 Website Tickets and Travel Info
16:43 Advice for First Timers
20:07 In Person Focus and Event Highlights
21:46 How to Contact and Book
23:11 Final Call to Join and ResourcesThis conference is supported financially by The Tavistock Trust for Aphasia and the British Aphasiology Society
British Aphasiology Society
Fostering the study of aphasia and enhancing clinical services for those affected
Disclaimer: This post contains affiliate links. If you make a purchase, I may receive a commission at no extra cost to you.Support the show: Donate Now
This podcast is funded by https://www.bas.org.uk
To watch Jonathan’s film: https://tipofmytonguefilm.com
YouTube: https://www.youtube.com/@tipofmytonguefilmLinkedin: https://www.linkedin.com/in/jonathanhirons/
Instagram: https://www.instagram.com/tipofmytonguepodcast/
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The Tavistock Trust for Aphasia website
http://aphasiatavistocktrust.orgEmpowering Voices: Dyscovering Aphasia Journeys
Send us Fan MailLong-Term Aphasia Support with Dyscover: Conversation Groups, Recovery, and AwarenessHosts Rob Edwards and Jonathan Hirons introduce their podcast follow-up to Hirons’ film on aphasia, a …
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Long-Term Aphasia Support with Dyscover: Conversation Groups, Recovery, and Awareness
Hosts Rob Edwards and Jonathan Hirons introduce their podcast follow-up to Hirons’ film on aphasia, a language impairment often caused by stroke or brain injury, affecting speaking, reading, writing, and texting; they note 350,000 people in the UK have aphasia and awareness is low. After an ad inviting sponsorships, they speak with Dyscover charity staff Julie Samuel and Caroline McDonald, plus members Sarah, Neil, and Deena. Dyscover, founded over 30 years ago, provides long-term, facilitated conversation groups (in-person and online) for about 100 members and families. The members describe their strokes and varied recovery, ongoing challenges like fatigue and noise, and how Dyscover’s patience, practice, friendships, ambassador talks, research/training roles, and activities support confidence, identity, and life participation; they discuss patchy access, funding limits, and joint awareness efforts through the Aphasia Alliance.
00:00 Podcast Welcome
00:30 What Is Aphasia
01:09 Sponsor Message
02:16 Meet Dyscover Team
03:34 What Dyscover Does
05:48 Members Stroke Stories
06:20 Sarah Living With Aphasia
08:39 Neil Recovery Journey
11:06 Deena Progress And Challenges
13:46 Long Term Support Gaps
18:39 How Dyscover Helps Members
22:05 Neil As Ambassador
23:59 Editing Skills Return
24:40 Back at BBC Freelance
24:48 Deena Finds Support
26:28 Future of Discover
28:12 Online Groups Reach
30:36 Government Awareness Gap
31:24 Ambassadors Long Term Support
36:30 Deena Cycling Story
38:09 Closing Thanks and Resources
Dyscover webside:
Support the show: Donate Now
This podcast is funded by https://www.bas.org.uk
To watch Jonathan’s film: https://tipofmytonguefilm.com
YouTube: https://www.youtube.com/@tipofmytonguefilmLinkedin: https://www.linkedin.com/in/jonathanhirons/
Instagram: https://www.instagram.com/tipofmytonguepodcast/
X: http://x.com/buffaloloungeuk
The Tavistock Trust for Aphasia website
http://aphasiatavistocktrust.orgKapitel
Kapitel werden geladen …
Reimagining Creativity After Stroke with Dr. Jess Johansson
Mit Dr Jessica Johansson
Send us Fan MailCreativity, Hope, and Life After Stroke: Supporting People with Aphasia Beyond RehabHosts Rob Edwards and Jonathan Hirons introduce their “On the Tip of My Tongue” podcast, a follow-up to …
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Creativity, Hope, and Life After Stroke: Supporting People with Aphasia Beyond Rehab
Hosts Rob Edwards and Jonathan Hirons introduce their “On the Tip of My Tongue” podcast, a follow-up to Jonathan’s film about aphasia, a brain-injury condition often caused by stroke that affects language in speaking, writing, reading, and texting; they note 350,000 people in the UK have aphasia yet public awareness is low compared with Parkinson’s. Guest Dr. Jess Johansson, a senior stroke researcher at the University of Leeds/Bradford Institute of Health Research, discusses her 13 years in stroke research and a planned NIHR fellowship application to integrate creative approaches into stroke care and extend support after services end. She describes using crafts like vision boards in stroke groups to promote relaxation, hope, and meaningful activity, emphasizing neuroplasticity and recovery beyond assumed plateaus. The conversation covers fragmented care, the value of groups and social connection, inclusion of people living alone or from deprived backgrounds, shifting away from deficit-focused models, engaging GPs, and raising aphasia awareness through public-facing art exhibitions.
00:00 Creativity After Stroke
00:25 Podcast Intro And Aphasia
01:22 Meet Dr Jess Johansson
02:00 Creative Care Fellowship Plan
03:28 Why Creativity Helps
05:04 Whole Person Recovery
07:16 Research With Stroke Groups
10:12 Access And Inequality
12:01 Living Alone And Support
13:28 Mental Health Adjustment
15:50 Recovery Beyond Plateau
19:43 GPs And Deficit Model
23:01 Raising Aphasia Awareness
25:47 Closing Thoughts And Thanks
26:42 Resources And Communityhttp://www.linkedin.com/in/dr-jess-johansson-091923383/
Support the show: Donate Now
This podcast is funded by https://www.bas.org.uk
To watch Jonathan’s film: https://tipofmytonguefilm.com
YouTube: https://www.youtube.com/@tipofmytonguefilmLinkedin: https://www.linkedin.com/in/jonathanhirons/
Instagram: https://www.instagram.com/tipofmytonguepodcast/
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The Tavistock Trust for Aphasia website
http://aphasiatavistocktrust.orgAphasia Awareness Month Q&A: Myths, Carer Support, Recovery, and the Future
Send us Fan MailAphasia Awareness Month Q&A: Myths, Carer Support, Recovery, and the FutureDuring Aphasia Awareness Month, the podcast hosts a Q&A on aphasia—an often overlooked language disorder affecting …
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Aphasia Awareness Month Q&A: Myths, Carer Support, Recovery, and the Future
During Aphasia Awareness Month, the podcast hosts a Q&A on aphasia—an often overlooked language disorder affecting speaking, understanding, reading, and writing, commonly after stroke or brain injury—with more than 350,000 people living with it in the UK. Guest Ann Hirons shares a carer’s perspective, discussing how aphasia is treated as a secondary condition, its “quiet crisis” impact on identity and family life, and the need to avoid carer burnout by creating therapy-free zones. The episode debunks the myth that impaired speech means impaired intellect, offers practical tips for everyday interactions (patience, simple questions, don’t finish sentences, use writing/pointing), and explores living with slowed communication and fatigue. It addresses the post-NHS-therapy “cliff edge,” benefits of peer groups, realistic recovery through practice and small steps, and roles for AI tools and creative outlets like film, art, and music supported by neuroplasticity.
00:00 Aphasia Awareness Intro
01:49 Why Aphasia Is Overlooked
03:53 Carer Burnout Balance
06:11 Everyday Anxiety And Support
09:20 Myths About Intelligence
11:36 Simple Communication Tips
13:41 Invisible Prison Advice
16:16 Aphasia Fatigue Reality
17:47 After Therapy Ends
19:08 Recovery Expectations
21:45 AI And Future Tools
23:10 Creativity And Neuroplasticity
25:53 Closing And ResourcesSupport the show: Donate Now
This podcast is funded by https://www.bas.org.uk
To watch Jonathan’s film: https://tipofmytonguefilm.com
YouTube: https://www.youtube.com/@tipofmytonguefilmLinkedin: https://www.linkedin.com/in/jonathanhirons/
Instagram: https://www.instagram.com/tipofmytonguepodcast/
X: http://x.com/buffaloloungeuk
The Tavistock Trust for Aphasia website
http://aphasiatavistocktrust.orgSpeak Up for Aphasia: A Global Awareness Campaign Update
Mit Claire Bennington
Send us Fan MailSpeak Up for Aphasia: A Global Awareness Campaign UpdateGuest Claire Bennington updates on fundraising for an international aphasia awareness campaign creating a suite of animated videos in …
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Speak Up for Aphasia: A Global Awareness Campaign Update
Guest Claire Bennington updates on fundraising for an international aphasia awareness campaign creating a suite of animated videos in multiple languages, launched worldwide with one consistent message. The Tavistock Trust for Aphasia has pledged £35,429 if matched; the campaign is at 57% (about £22,304/42,000 AUD) and aims to raise the remainder by end of June 2026, with a global launch targeted for Aphasia Awareness Month in June 2027. Partners include the Collaboration of Aphasia Trialists for native-speaker translations, champion networks, and free hosting of assets. The message emphasizes “recognize, respond and respect” and that aphasia does not affect intelligence; listeners are asked to donate, fundraise, provide support letters, and follow “Speak Up for Aphasia” on Facebook.
00:00 Welcome and Hosts
00:18 What Is Aphasia
01:24 Campaign Mission and Funding Goal
05:16 Global Partners and Translations
06:42 Public Message Recognize Respond Respect
09:03 Timeline to June 2027 Launch
11:09 How You Can Support
13:02 Wrap Up and ResourcesFacebook: https://www.facebook.com/profile.php?id=61572140991752
Donate to the International Aphasia Awareness campaign:
https://justgiving.com/campaign/qarc-uq-aphasia-awareness
Support the show: Donate Now
This podcast is funded by https://www.bas.org.uk
To watch Jonathan’s film: https://tipofmytonguefilm.com
YouTube: https://www.youtube.com/@tipofmytonguefilmLinkedin: https://www.linkedin.com/in/jonathanhirons/
Instagram: https://www.instagram.com/tipofmytonguepodcast/
X: http://x.com/buffaloloungeuk
The Tavistock Trust for Aphasia website
http://aphasiatavistocktrust.orgLife Beyond Aphasia: Supporting Care Partners and Building a Movement
Send us Fan MailHosts Rob Edwards and Jonathan Hirons introduce guest, Genevieve Richardson, a US speech-language pathologist, focuses on supporting “care partners,” arguing recovery improves when caregivers …
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Hosts Rob Edwards and Jonathan Hirons introduce guest, Genevieve Richardson, a US speech-language pathologist, focuses on supporting “care partners,” arguing recovery improves when caregivers receive training and support to prevent burnout. They compare UK and US support systems, discussing variability in access, the role of insurance and advocacy, and the importance of in-person and online groups to combat isolation. Genevieve describes her telepractice, 12-month care partner roadmap with weekly training and live support, plus a bootcamp and membership, addressing communication strategies and practical life needs like legal and emergency planning. They discuss collaboration via new websites and resources, and share links to the film and Genevieve’s podcast and sites.
00:00 Aphasia Needs Action
00:12 Podcast Welcome and Aphasia Basics
01:09 Care Partners Matter
02:05 US vs UK Support Systems
04:20 Groups and Ongoing Resources
06:46 Genevieve Care Partner Roadmap
10:24 How the 12 Month Program Works
11:42 Community Fights Isolation
13:05 Scaling Up and The Numbers
14:16 Life Logistics and Caregiver Tools
17:50 Building a Global Movement
19:07 Aphasia Energy and The Gas Tank
20:28 New Website and Collaboration
21:52 Genevieve Podcast and Bootcamp
23:13 Wrap Up Links and Resources
24:44 Final Credits and Sign OffGenevieve's websites:
https://www.dolifespeechpathology.com
https://www.lifeaphasiaacademy.co
Support the show: Donate Now
This podcast is funded by https://www.bas.org.uk
To watch Jonathan’s film: https://tipofmytonguefilm.com
YouTube: https://www.youtube.com/@tipofmytonguefilmLinkedin: https://www.linkedin.com/in/jonathanhirons/
Instagram: https://www.instagram.com/tipofmytonguepodcast/
X: http://x.com/buffaloloungeuk
The Tavistock Trust for Aphasia website
http://aphasiatavistocktrust.orgHanka Mayhew: The Multilingual Advocate for Aphasia Awareness"
Mit Hanka Mayhew
Send us Fan MailHanka Mayhew: A Polyglot’s Journey Through Aphasia and AdvocacyHanka Mayhew lived in Spain for 11 years with her husband and three children, speaking five languages and working as an English …
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Hanka Mayhew: A Polyglot’s Journey Through Aphasia and Advocacy
Hanka Mayhew lived in Spain for 11 years with her husband and three children, speaking five languages and working as an English teacher and translator until a massive brain bleed left her with aphasia and unable to speak. After three months in hospital in Spain and three in England, she spent a year in a wheelchair relearning how to live. On the Tip of My Tongue podcast, she explains that English and German are easiest, Spanish is slowly returning with little practice, and she can understand some French and Russian but cannot speak them; she retained reading ability but reads more slowly. In February 2024 she joined the Aphasia International Association and became a Say Aphasia ambassador, traveling to assemblies and conferences across Europe and giving talks with therapist support to raise awareness and build an international aphasia community.
00:00 Life in Spain
00:22 Stroke and Aphasia
00:58 Recovery Journey
01:11 Languages After Stroke
03:09 Reading and Fatigue
03:57 Joining AIA and Speaking
05:20 Aphasia Day in Italy
05:53 Future Plans and Travel
07:36 AIA Community and Outreach
11:05 Final ReflectionsSupport the show: Donate Now
This podcast is funded by https://www.bas.org.uk
To watch Jonathan’s film: https://tipofmytonguefilm.com
YouTube: https://www.youtube.com/@tipofmytonguefilmLinkedin: https://www.linkedin.com/in/jonathanhirons/
Instagram: https://www.instagram.com/tipofmytonguepodcast/
X: http://x.com/buffaloloungeuk
The Tavistock Trust for Aphasia website
http://aphasiatavistocktrust.orgFinding Words: AI and Aphasia
Mit Dr Abi Roper, Jez Hodgkinson und Robert Baldock
Send us Fan MailIn this episode of 'On the Tip of My Tongue,' hosts Rob Edwards and Jonathan Hirons with guest Dr. Abi Roper explore how artificial intelligence can assist people with Aphasia in …
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In this episode of 'On the Tip of My Tongue,' hosts Rob Edwards and Jonathan Hirons with guest Dr. Abi Roper explore how artificial intelligence can assist people with Aphasia in finding their voices again. The discussion covers the ways AI aids in simplifying text, improving written communication, and developing speech recognition technologies. The episode features Jez Hodgkinson, who created an AI-driven app to help with word-finding and introduces Robert Baldcock, a musician using AI-based personalized voice technology. The conversation highlights both the promise and pitfalls of AI in this field, addressing issues such as AI's limitations in real-time conversations and the need for co-designing tools that are genuinely empowering for users with Aphasia.
00:00 Introduction to the Podcast
00:21 Understanding Aphasia and AI's Potential
01:03 Dr. Abi Roper on AI and Aphasia
01:42 AI's Role in Simplifying Text
02:39 Speech Recognition Challenges and Advances
04:48 Jez Hodgkinson's AI App for Word Finding
07:26 Chatbots and Human Conversation
10:41 AI's Limitations and Hallucinations
12:33 Visual Support and Multimodal Communication
14:09 Robert Baldock Personalized Synthetic Voice
17:03 Co-Designing AI Tools with People with AphasiaSupport the show: Donate Now
This podcast is funded by https://www.bas.org.uk
To watch Jonathan’s film: https://tipofmytonguefilm.com
YouTube: https://www.youtube.com/@tipofmytonguefilmLinkedin: https://www.linkedin.com/in/jonathanhirons/
Instagram: https://www.instagram.com/tipofmytonguepodcast/
X: http://x.com/buffaloloungeuk
The Tavistock Trust for Aphasia website
http://aphasiatavistocktrust.orgKapitel
Kapitel werden geladen …
Bridging the Gap: AI and Aphasia with Dr. Abi Roper
Send us Fan MailIn this episode of 'On the Tip of My Tongue,' hosts Rob Edwards and Jonathan Hirons delve into the world of AI and its applications in treating Aphasia, a debilitating condition …
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In this episode of 'On the Tip of My Tongue,' hosts Rob Edwards and Jonathan Hirons delve into the world of AI and its applications in treating Aphasia, a debilitating condition affecting language abilities, following brain injuries like strokes. Joining them is Dr. Abi Roper from City, St. George's University, London. Dr. Roper discusses how AI tools, like speech recognition technologies and AI-driven text simplification, benefit individuals with Aphasia by aiding communication and daily tasks. She also addresses the limitations of AI, such as its inability to fully replicate human conversational skills and the importance of verifying AI-generated information. The episode highlights ongoing research and projects aimed at harnessing AI in therapy, underscoring AI's potential to support but not replace human therapists.
00:00 Introduction to AI and Aphasia
01:18 Meet Dr. Abby Roper
01:43 AI's Role in Assisting Aphasia
03:13 Speech Recognition and Practical Uses
05:25 Challenges and Limitations of AI
27:07 The Future of AI in Therapy
30:35 Conclusion and ResourcesSupport the show: Donate Now
This podcast is funded by https://www.bas.org.uk
To watch Jonathan’s film: https://tipofmytonguefilm.com
YouTube: https://www.youtube.com/@tipofmytonguefilmLinkedin: https://www.linkedin.com/in/jonathanhirons/
Instagram: https://www.instagram.com/tipofmytonguepodcast/
X: http://x.com/buffaloloungeuk
The Tavistock Trust for Aphasia website
http://aphasiatavistocktrust.orgUnderstanding Aphasia: Personal Stories and Community Support
Send us Fan MailIn this episode, Rob Edwards and Jonathan Hirons host Chris Greenhough, a stroke survivor with aphasia who leads support groups, and Lisa Thomas, a senior speech and language therapist with the …
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In this episode, Rob Edwards and Jonathan Hirons host Chris Greenhough, a stroke survivor with aphasia who leads support groups, and Lisa Thomas, a senior speech and language therapist with the NHS. They discuss the impact of aphasia, a condition affecting the brain's language capabilities, and the importance of community support and therapy. Chris shares his journey of recovery and involvement in running aphasia support groups, while Lisa talks about the challenges and successes in creating community communication groups. They also touch on the difficulties of raising awareness about aphasia and the need for better support from businesses and transport facilities to help individuals access group sessions.
00:00 Introduction to the Podcast
00:38 Understanding Aphasia
01:16 Chris's Journey with Aphasia
01:42 Lisa's Role and Contributions
02:06 Chris's Aphasia Groups
04:58 Lisa's Connection to Say Aphasia
06:56 Challenges and Solutions in Aphasia Care
10:36 Group Activities and Social Impact
14:52 Transport Issues and Community Support
22:06 Raising Awareness and Future Goals
24:49 Conclusion and Resource
https://www.sayaphasia.org/worcester
Support the show: Donate Now
This podcast is funded by https://www.bas.org.uk
To watch Jonathan’s film: https://tipofmytonguefilm.com
YouTube: https://www.youtube.com/@tipofmytonguefilmLinkedin: https://www.linkedin.com/in/jonathanhirons/
Instagram: https://www.instagram.com/tipofmytonguepodcast/
X: http://x.com/buffaloloungeuk
The Tavistock Trust for Aphasia website
http://aphasiatavistocktrust.orgAI and Aphasia: Overcoming Communication Barriers - S3 Ep 8 with Jez Hodgkinson
Send us Fan MailAI and Aphasia: Overcoming Communication BarriersIn this episode of 'On the Tip of My Tongue' podcast, Jez shares his personal journey with Aphasia following a severe stroke in 2016 …
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AI and Aphasia: Overcoming Communication Barriers
In this episode of 'On the Tip of My Tongue' podcast, Jez shares his personal journey with Aphasia following a severe stroke in 2016. He discusses the challenges he faced in communicating and how he overcame them by starting a local Aphasia support group during the COVID-19 pandemic. Jez also delves into his long-standing interest in AI, dating back to the 1980s, and explains how AI has significantly advanced in recent years. He introduces an AI-powered app he developed to assist Aphasia sufferers in recalling words more easily. The conversation highlights the potential of AI to support individuals with communication difficulties while noting the broader implications of AI technology in society.
00:00 Introduction and Guest Background
00:15 Overcoming Aphasia: Personal Journey
01:28 Community Involvement and Support Groups
03:17 Introduction to AI and Early Experiences
05:14 Developing an AI App for Aphasia
15:41 Practical Uses of AI in Daily Life
22:27 Challenges and Future of AI
25:17 Conclusion and Final ThoughtsSay Aphasia Group Winchester and Southampton
https://www.sayaphasia.org/winchester
Support the show: Donate Now
This podcast is funded by https://www.bas.org.uk
To watch Jonathan’s film: https://tipofmytonguefilm.com
YouTube: https://www.youtube.com/@tipofmytonguefilmLinkedin: https://www.linkedin.com/in/jonathanhirons/
Instagram: https://www.instagram.com/tipofmytonguepodcast/
X: http://x.com/buffaloloungeuk
The Tavistock Trust for Aphasia website
http://aphasiatavistocktrust.orgOn the tip of my tongue Series 3 Episode 7 - "Therapy Notes: Elizabeth Nightingale"
Send us Fan MailTransformative Power of Music Therapy with Elizabeth NightingaleIn this podcast episode of 'On the Tip of My Tongue,' hosts Rob Edwards and Jonathan Hirons are joined by Elizabeth …
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Transformative Power of Music Therapy with Elizabeth Nightingale
In this podcast episode of 'On the Tip of My Tongue,' hosts Rob Edwards and Jonathan Hirons are joined by Elizabeth Nightingale, a neurological music therapist. The discussion delves into the impactful role of music therapy across various fields, including stroke recovery, pediatrics, and palliative care. Elizabeth shares insights into the innovative programs at Chilton Music Therapy, which blend music with community outreach and online learning. The conversation also covers the specifics of music therapy for Aphasia patients, highlighting the cognitive and emotional benefits, the development of new neural pathways, and the creation of supportive communities. The episode emphasizes the nationwide accessibility of these services through online platforms, making therapeutic music interventions available even in remote and under-served areas.
00:00 Introduction to the Podcast
00:54 Meet the Hosts and the Topic of Aphasia
01:49 Welcoming Elizabeth Nightingale
02:23 Overview of Chiltern Music Therapy
03:57 Impact of Music Therapy on Various Conditions
05:22 The Science Behind Music Therapy
07:23 Online Aphasia Music Therapy Groups
09:13 Access and Participation Details
18:23 Promoting the Online Groups
21:24 Concluding Remarks and Resources
For more info about Chiltern and Aphasia
https://www.chilternmusictherapy.co.uk/stories/use-your-voice-aphasia
Support the show: Donate Now
This podcast is funded by https://www.bas.org.uk
To watch Jonathan’s film: https://tipofmytonguefilm.com
YouTube: https://www.youtube.com/@tipofmytonguefilmLinkedin: https://www.linkedin.com/in/jonathanhirons/
Instagram: https://www.instagram.com/tipofmytonguepodcast/
X: http://x.com/buffaloloungeuk
The Tavistock Trust for Aphasia website
http://aphasiatavistocktrust.orgInternational Aphasia Awareness Campaign with Claire Bennington
Send us Fan MailInternational Aphasia Awareness Campaign with Claire BenningtonIn this episode of 'Tip of My Tongue,' hosts Rob Edwards and Jonathan Hirons speak with Claire Bennington, chairperson of …
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International Aphasia Awareness Campaign with Claire Bennington
In this episode of 'Tip of My Tongue,' hosts Rob Edwards and Jonathan Hirons speak with Claire Bennington, chairperson of the Australian Aphasia Association and an experienced speech and language therapist. Claire shares her extensive experience working with adults with Aphasia, details her involvement with the Australian Aphasia Association since 2018, and discusses her PhD project, which focuses on co-designing a unified international Aphasia awareness campaign. The conversation covers the current fundraising initiatives, the challenges of raising awareness for Aphasia, and the ways listeners can get involved. Claire also highlights the importance of global collaboration and multi-language accessibility for the campaign materials aiming to make a significant impact on Aphasia awareness worldwide.
00:00 Introduction to the Podcast and Guest
01:24 Understanding Aphasia
02:01 Claire Bennington's Background and Role
03:47 Challenges and Activities of the Australian Aphasia Association
06:19 Fundraising Efforts and Campaigns
09:03 Global Aphasia Awareness Campaign
17:29 Conclusion and How to Get InvolvedTo donate to Claire's Just Giving page, click here:
https://www.justgiving.com/campaign/qarc-uq-aphasia-awareness
To contact Claire about the Match the Momentum: Unite for Aphasia Awareness campaign
Claire Bennington - [email protected]>
Support the show: Donate Now
This podcast is funded by https://www.bas.org.uk
To watch Jonathan’s film: https://tipofmytonguefilm.com
YouTube: https://www.youtube.com/@tipofmytonguefilmLinkedin: https://www.linkedin.com/in/jonathanhirons/
Instagram: https://www.instagram.com/tipofmytonguepodcast/
X: http://x.com/buffaloloungeuk
The Tavistock Trust for Aphasia website
http://aphasiatavistocktrust.orgRobert Baldock's Voice of Recovery, Music and Aphasia
Mit Robert Baldock
Send us Fan MailOvercoming Aphasia: Robert Baldock’s Journey and AdvocacyThis episode of 'On the Tip of My Tongue' features Robert Baldock, a Scottish-based composer and new media artist who …
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Overcoming Aphasia: Robert Baldock’s Journey and Advocacy
This episode of 'On the Tip of My Tongue' features Robert Baldock, a Scottish-based composer and new media artist who experienced a severe ischemic stroke in 2017, resulting in acute aphasia and severe verbal dyspraxia. Robert shares his journey through his stroke, the challenges he faced with communication, and his path to recovery. He discusses his innovative use of technology and alternative communication methods, including a synthetic voice developed from his radio recordings. Additionally, Robert talks about his advocacy efforts for the reinstatement of the thrombectomy procedure in Scotland, demonstrating his resilience and commitment to helping others. For more information on strokes and aphasia, listeners are directed to several helpful resources.
00:00 Introduction to Robert Baldock
00:50 Understanding Aphasia
01:33 Robert's Stroke Experience
03:26 Life After Stroke
07:09 Communication Challenges and Solutions
08:43 Advocacy and Campaigning
09:33 Conclusion and ResourcesFor more information about Robert and Andy Fielding (AKA MC Zirconium) is on their website
https://www.projectmoonbase.com
Robert's original music can be found on his Band Camp website
https://aleatorymusicsystems.bandcamp.com/music
Support the show: Donate Now
This podcast is funded by https://www.bas.org.uk
To watch Jonathan’s film: https://tipofmytonguefilm.com
YouTube: https://www.youtube.com/@tipofmytonguefilmLinkedin: https://www.linkedin.com/in/jonathanhirons/
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The Tavistock Trust for Aphasia website
http://aphasiatavistocktrust.orgLife in the key of Aphasia - Graham Hall
Send us Fan MailJoin us as Graham Hall shares his inspiring journey through music and Aphasia in our newest episode of "On the Tip of My Tongue". Learn how his passion for percussion and songwriting helps him …
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Join us as Graham Hall shares his inspiring journey through music and Aphasia in our newest episode of "On the Tip of My Tongue". Learn how his passion for percussion and songwriting helps him overcome challenges. Listen today! 😊 #Aphasia #MusicHealing #Podcast
Living with Aphasia: A Journey Through Music and Recovery
Rob Edwards and Jonathan Hirons discuss the impact of Aphasia following a stroke experienced by Graham 10 years ago. The podcast, titled 'On the Tip of My Tongue', complements a film about Aphasia made by Jonathan. Aphasia impairs language skills and affects 350,000 people in the UK, yet remains relatively unknown. Graham shares his journey of adapting to life post-stroke, highlighting his transition from performing with Opera North to creating music and lyrics to aid his recovery and raise awareness. The discussion underscores the therapeutic power of music, the struggle with word-finding, and the broader impact of Aphasia.
00:00 A Life-Changing Stroke
01:03 Introduction to the Podcast
01:22 Understanding Aphasia
01:59 Personal Journey with Aphasia
03:20 Musical Career and Aphasia
05:02 Creating Music with Aphasia
07:48 Future Aspirations and Reflections
11:49 Conclusion and ResourcesGraham's website: https://grahamhall.bandcamp.com/music
Support the show: Donate Now
This podcast is funded by https://www.bas.org.uk
To watch Jonathan’s film: https://tipofmytonguefilm.com
YouTube: https://www.youtube.com/@tipofmytonguefilmLinkedin: https://www.linkedin.com/in/jonathanhirons/
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The Tavistock Trust for Aphasia website
http://aphasiatavistocktrust.orgThe Aphasia Awareness Month Special
Send us Fan MailAphasia in Popular Culture and Awareness: Exploring the Silent StruggleIn this episode of 'On the Tip of My Tongue,' hosts Rob Edwards and Jonathan Hirons delve into the world of …
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Aphasia in Popular Culture and Awareness: Exploring the Silent Struggle
In this episode of 'On the Tip of My Tongue,' hosts Rob Edwards and Jonathan Hirons delve into the world of Aphasia—a condition caused by brain injury that significantly impacts communication abilities. They discuss its portrayal in popular culture, specifically referencing a character with Aphasia in the detective series 'Department Q.' The hosts highlight the importance of Aphasia awareness, especially during June, the designated Aphasia Awareness Month. They share insights about various types of Aphasia, mention notable individuals like Maurice Ravel and Bruce Willis who have faced the condition, and the impact and advances in therapy. The conversation also touches on diverse topics including a musician friend, Graham Hall, and a nostalgic reflection on Rob's appearance in 'Doctor Who.' The episode underscores the significance of awareness and community support in understanding and managing Aphasia.
00:00 Introduction to the Podcast and Hosts
00:45 Understanding Aphasia
02:05 Aphasia in Popular Culture
04:51 Interview with Graham Hall
07:27 Famous People with Aphasia
14:37 Rob's Doctor Who Experience
19:58 Podcast Growth and Listener Demographics
21:23 Conclusion and ResourcesLife in the key of Aphasia - https://grahamhall.bandcamp.com
Support the show: Donate Now
This podcast is funded by https://www.bas.org.uk
To watch Jonathan’s film: https://tipofmytonguefilm.com
YouTube: https://www.youtube.com/@tipofmytonguefilmLinkedin: https://www.linkedin.com/in/jonathanhirons/
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The Tavistock Trust for Aphasia website
http://aphasiatavistocktrust.orgNavigating Conversations with Aphasia: Insights from Iain Stansfield
Send us Fan MailNavigating Conversations with Aphasia: Insights from Iain StansfieldIn this episode of 'On the Tip of My Tongue,' hosts Rob Edwards and Jonathan Hirons explore the intricacies of …
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Navigating Conversations with Aphasia: Insights from Iain Stansfield
In this episode of 'On the Tip of My Tongue,' hosts Rob Edwards and Jonathan Hirons explore the intricacies of living with aphasia through a conversation with Iain Stansfield and Dr. Suzanne Beeke. Iain shares his personal journey following a stroke, emphasising the challenges of communicating with aphasia and the impact on relationships. The discussion delves into experiences from the 'Better Conversations with Aphasia' therapy group, a program developed by Dr. Beeke at UCL. Key points include the significance of video reflection in improving communication strategies and the evolving dynamic between individuals with aphasia and their partners. Listeners are encouraged to support the podcast and can find more resources at stroke.org.uk, sayaphasia.org, or the NHS aphasia page.
00:00 Understanding Aphasia: A Shift in Conversations
00:34 Welcome to 'On the Tip of My Tongue'
02:33 Introducing Iain Stansfield
03:06 The Therapy Group Experience
04:42 Reflections on Communication Challenges
06:40 Impact of Video Reflections
07:37 Changes and Insights Post-Therapy
10:49 Future Directions and Final Thoughts
12:33 Conclusion and ResourcesSupport the show: Donate Now
This podcast is funded by https://www.bas.org.uk
To watch Jonathan’s film: https://tipofmytonguefilm.com
YouTube: https://www.youtube.com/@tipofmytonguefilmLinkedin: https://www.linkedin.com/in/jonathanhirons/
Instagram: https://www.instagram.com/tipofmytonguepodcast/
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The Tavistock Trust for Aphasia website
http://aphasiatavistocktrust.orgDan's Journey: Triumph Over Aphasia
Send us Fan MailDan's Journey: Triumph Over AphasiaIn this episode of 'On the Tip of My Tongue,' hosts Rob Edwards and Jonathan Hirons delve into the life of Dan Sutton, who suffered severe head …
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Dan's Journey: Triumph Over Aphasia
In this episode of 'On the Tip of My Tongue,' hosts Rob Edwards and Jonathan Hirons delve into the life of Dan Sutton, who suffered severe head injuries from a cycling accident in 2016. These injuries resulted in Aphasia and mobility challenges. Despite his struggles, Dan founded the Minds Over Matter Social Group to create a supportive community for individuals with brain injuries. The episode explores Dan's daily routines, his love for social activities, and how he navigates the complexities of living with Aphasia. Listeners learn about the significance of shared experiences and community support in overcoming adversity. The hosts also highlight the importance of raising awareness about Aphasia, a condition that remains relatively unknown despite affecting 350,000 people in the UK.
00:00 Understanding Brain Injury and Aphasia
00:23 Introduction to the Podcast
00:41 What is Aphasia?
01:19 Dan Sutton's Inspiring Journey
02:07 Daily Life and Challenges
02:44 Social Activities and Hobbies
04:10 Struggles with Reading and Audio Books
05:54 The Power of Community and Support
09:10 Singing and Aphasia
10:14 Conclusion and ResourcesVisit the to Minds over Matter instagram account
https://www.instagram.com/mindsovermatter.osm/
Support the show: Donate Now
This podcast is funded by https://www.bas.org.uk
To watch Jonathan’s film: https://tipofmytonguefilm.com
YouTube: https://www.youtube.com/@tipofmytonguefilmLinkedin: https://www.linkedin.com/in/jonathanhirons/
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The Tavistock Trust for Aphasia website
http://aphasiatavistocktrust.orgBreaking Barriers: Disability Awareness and Inclusion with Sarah Petherbridge
Send us Fan MailBreaking Barriers: Disability Awareness and Inclusion with Sarah PetherbridgeIn this episode of 'On the Tip of My Tongue,' hosts Rob Edwards and Jonathan Hirons discuss the challenges …
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Breaking Barriers: Disability Awareness and Inclusion with Sarah Petherbridge
In this episode of 'On the Tip of My Tongue,' hosts Rob Edwards and Jonathan Hirons discuss the challenges and misconceptions surrounding disabilities, particularly aphasia. They are joined by Sarah Petherbridge, a disability trainer and speaker who shares her experiences of living with profound deafness and working in the corporate sector. Sarah emphasizes the importance of creating inclusive workplaces and the need for a shift from diversity initiatives to genuine inclusion. She discusses the impact of government policies on disability rights, the importance of technology, and the necessity of changing societal attitudes. The conversation also highlights strategies for small businesses to promote inclusivity without incurring substantial costs. The episode underscores the broader definition of disability and the significant progress needed to close the disability employment and pay gaps.
00:00 Introduction to the Podcast
00:36 Understanding Aphasia
01:13 Meet Sarah Petherbridge: Disability Trainer and Speaker
02:19 Sarah's Journey and Business
03:02 Challenges and Changes in Disability Inclusion
06:17 Employment Gaps and Workplace Adjustments
19:39 The Role of Technology in Disability Inclusion
20:30 Social Perceptions and Personal Experiences
31:29 Future Outlook and Final Thoughts
32:51 Conclusion and Resourceshttps://www.sarahpetherbridge.co.uk
Support the show: Donate Now
This podcast is funded by https://www.bas.org.uk
To watch Jonathan’s film: https://tipofmytonguefilm.com
YouTube: https://www.youtube.com/@tipofmytonguefilmLinkedin: https://www.linkedin.com/in/jonathanhirons/
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The Tavistock Trust for Aphasia website
http://aphasiatavistocktrust.orgResilience and Recovery: Talia Lazarus' Inspiring Journey
Mit Talia Lazarus
Send us Fan MailIn this episode of 'On the Tip of My Tongue,' hosts Rob Edwards and Jonathan Hirons welcome Talia Lazarus, a presenter, broadcaster, and host of the mental health podcast, 'I Got …
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In this episode of 'On the Tip of My Tongue,' hosts Rob Edwards and Jonathan Hirons welcome Talia Lazarus, a presenter, broadcaster, and host of the mental health podcast, 'I Got Back Up.' Talia shares her harrowing story of a devastating electric scooter accident in 2021, which resulted in serious leg injuries and an 18-month rehabilitation journey. She discusses her physical and mental recovery, overcoming multiple surgeries, and even achieving the incredible feat of running a half marathon only 10 months post-surgery. The conversation delves into the power of mindset, the significance of embracing fears, and the transformative journey that led Talia to a successful career in sports broadcasting and mental health advocacy. With heartfelt anecdotes and insightful advice, this episode underscores the importance of resilience, community, and self-belief.
00:00 Introduction to Talia Lazarus' Journey
00:48 Understanding Aphasia
01:49 The Accident and Immediate Aftermath
03:59 The Road to Recovery
05:58 Running a Half Marathon
09:29 Starting the Podcast
13:56 Career as a Presenter and Broadcaster
21:44 Embracing Positivity and Overcoming Challenges
31:43 Reflections and Future Plans
36:56 Closing Remarks and FarewellSupport the show: Donate Now
This podcast is funded by https://www.bas.org.uk
To watch Jonathan’s film: https://tipofmytonguefilm.com
YouTube: https://www.youtube.com/@tipofmytonguefilmLinkedin: https://www.linkedin.com/in/jonathanhirons/
Instagram: https://www.instagram.com/tipofmytonguepodcast/
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The Tavistock Trust for Aphasia website
http://aphasiatavistocktrust.orgBrain Injury and Returning to Work - Tamsin Keyes of Headway
Mit Tamsin Keyes
Send us Fan MailUnderstanding Acquired Brain Injuries: Challenges and Support Systems plus Returning to WorkIn this episode, Jonathan interviews Tamsin Keyes, the Publications and Research Manager at HEADWAY …
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Understanding Acquired Brain Injuries: Challenges and Support Systems plus Returning to Work
In this episode, Jonathan interviews Tamsin Keyes, the Publications and Research Manager at HEADWAY, the Brain Injury Association. Tamsin provides an in-depth explanation of what constitutes a brain injury, ranging from traumatic incidents to medical complications like strokes and aneurysms. She also outlines the difficulties individuals face when returning to work post-injury, including cognitive challenges and workplace accommodations. The discussion highlights the hidden nature of brain injuries and the importance of awareness, support, and legal rights under the Equality Act. Tamsin also shares resources and services provided by HEADWAY, including their helpline, local support groups, and vocational rehabilitation options. The episode aims to raise awareness and offer practical advice for individuals affected by brain injuries and their families.
00:00 Introduction to HEADWAY and Brain Injury
00:28 Understanding Brain Injuries
02:50 Challenges of Returning to Work
08:14 Support Systems for Employment
14:37 HEADWAY's Services and Support
23:27 Conclusion and Final Thoughtswww.gov.uk/government/collections/disability-confident-campaign
www.jobcentreguide.co.uk/about-disability-employment-advisors
www.gov.uk/guidance/equality-act-2010-guidance
www.vrassociationuk.com/resources-for-individuals
www.ncvo.org.uk/get-involved/volunteering/volunteering-opportunities
Support the show: Donate Now
This podcast is funded by https://www.bas.org.uk
To watch Jonathan’s film: https://tipofmytonguefilm.com
YouTube: https://www.youtube.com/@tipofmytonguefilmLinkedin: https://www.linkedin.com/in/jonathanhirons/
Instagram: https://www.instagram.com/tipofmytonguepodcast/
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The Tavistock Trust for Aphasia website
http://aphasiatavistocktrust.orgBring on the nouns - Graham Hall's take on Aphasia
Send us Fan MailOvercoming Aphasia: The Journey of Graham HallIn this episode of 'On the Tip of My Tongue,' hosts Rob Edwards and Jonathan Hirons discuss aphasia with Graham Hall, an orchestral …
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Overcoming Aphasia: The Journey of Graham Hall
In this episode of 'On the Tip of My Tongue,' hosts Rob Edwards and Jonathan Hirons discuss aphasia with Graham Hall, an orchestral percussionist who suffered a stroke a decade ago. Graham shares his experiences dealing with aphasia, its impact on his career, and the challenges of regaining his speech and musical abilities. Despite losing the joy in playing music, Graham found fulfilment in music arrangement and preparation. The discussion touches on brain injury recovery, neuroplasticity, and the importance of continuous practice. Graham's story aims to raise awareness about aphasia and encourages support for individuals with brain injuries.
00:00 Introduction and Personal Story
00:34 Welcome to the Podcast
00:52 Understanding Aphasia
01:45 Graham Hall's Stroke Experience
03:20 Challenges in Music Post-Stroke
06:00 Reconnecting with Music
10:07 Living with Aphasia
14:31 Raising Awareness and Support
27:58 The Role of Family and Friends
29:55 Creative Coping Mechanisms
33:06 Conclusion and ResourcesBefore my stroke (2014) I used parody to comment/mock the situation in my musical life.
So I've been using that to describe my new life with aphasia. The lyrics are "contrafactum" (the substitution of text for another without change to the music) and comment on how I cope with brain damage and aphasia. The irony is that despite having musical anhedonia I'm still a musician!https://grahamhall.bandcamp.com
Amongst other books , Graham recommends Musicophilia
[ https://www.oliversacks.com/oliver-sacks-books/musicophilia-oliver-sacks/]
Support the show: Donate Now
This podcast is funded by https://www.bas.org.uk
To watch Jonathan’s film: https://tipofmytonguefilm.com
YouTube: https://www.youtube.com/@tipofmytonguefilmLinkedin: https://www.linkedin.com/in/jonathanhirons/
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The Tavistock Trust for Aphasia website
http://aphasiatavistocktrust.orgKapitel
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Overcoming Aphasia - Nigel Cheffers-Heard and Paula Fernley
Send us Fan MailSurviving Stroke and Navigating Aphasia: Nigel's StoryThis podcast episode titled 'On the Tip of My Tongue' features Rob Edwards and Jonathan Hirons discussing aphasia, a language …
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Surviving Stroke and Navigating Aphasia: Nigel's Story
This podcast episode titled 'On the Tip of My Tongue' features Rob Edwards and Jonathan Hirons discussing aphasia, a language impairment often caused by a stroke or brain injury. They interview Paula Fearnley and Nigel Cheffers-Heard to hear Nigel's journey of recovering from a stroke that resulted in aphasia. Paula shares her challenges as a caregiver, their struggles with the healthcare system, and Nigel's progress over six years. The episode explores the social and occupational difficulties faced by aphasia patients and highlights the importance of community support, exercise, and persistence in recovery. It concludes by addressing the need for better workplace integration for those affected by aphasia.
00:00 A Shocking Turn of Events
00:29 Introduction to the Podcast
00:47 Understanding Aphasia
01:25 Nigel's Stroke Journey
04:07 The Struggle for Diagnosis
07:42 Recovery and Rehabilitation
10:57 Challenges in Daily Life
25:16 Returning to Work
31:58 Supporting Stroke Survivors
36:57 Conclusion and ResourcesSupport the show: Donate Now
This podcast is funded by https://www.bas.org.uk
To watch Jonathan’s film: https://tipofmytonguefilm.com
YouTube: https://www.youtube.com/@tipofmytonguefilmLinkedin: https://www.linkedin.com/in/jonathanhirons/
Instagram: https://www.instagram.com/tipofmytonguepodcast/
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The Tavistock Trust for Aphasia website
http://aphasiatavistocktrust.orgEmma Rich: Battling Aphasia and Advocating for Neuro Rehab
Send us Fan MailEmma Rich: Battling Aphasia and Advocating for Neuro RehabIn this episode, Emma Rich, Charity Coordinator at Say Aphasia, shares her harrowing journey with severe brain injury and subsequent …
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Emma Rich: Battling Aphasia and Advocating for Neuro Rehab
In this episode, Emma Rich, Charity Coordinator at Say Aphasia, shares her harrowing journey with severe brain injury and subsequent aphasia. She recounts her critical medical emergency, rehabilitation experiences, and the crucial role of neuroplasticity in her recovery. Emma discusses the importance of speech therapy, community support groups, and the uneven access to rehabilitation services. Advocating for better support and employment opportunities for brain injury and stroke survivors, Emma emphasizes the need for education, hope, and inclusive societal attitudes toward individuals with neurological conditions.
00:00 Introduction and Welcome
00:16 Emma's Brain Hemorrhage Experience
01:51 Recovery Journey Begins
03:45 Rehabilitation and Neuroplasticity
05:58 Challenges and Support Systems
10:21 Involvement with Say Aphasia
18:43 Employment and Inclusivity
29:34 Hope and Rehabilitation
31:54 Conclusion and Final Thoughts
Say Aphasia website: https://www.sayaphasia.orgSupport the show: Donate Now
This podcast is funded by https://www.bas.org.uk
To watch Jonathan’s film: https://tipofmytonguefilm.com
YouTube: https://www.youtube.com/@tipofmytonguefilmLinkedin: https://www.linkedin.com/in/jonathanhirons/
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The Tavistock Trust for Aphasia website
http://aphasiatavistocktrust.orgHidden Voices: Reflections on Aphasia and Care 2024 Round up
Send us Fan MailOvercoming Aphasia and the Importance of CarersIn this episode, the host reflects on past events and highlights key themes such as surviving a critical health incident in Las Vegas, the …
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Overcoming Aphasia and the Importance of Carers
In this episode, the host reflects on past events and highlights key themes such as surviving a critical health incident in Las Vegas, the significant role of communication in recovery from strokes, and the challenges and strategies for living with aphasia. The episode also emphasizes the importance of unpaid carers, their economic contribution, and the need for perseverance in finding effective communication methods post-injury. The narrative draws an analogy to living in a foreign country to convey the experience of aphasia, highlighting its often hidden nature and the frustration of not being recognized for having a serious condition.
00:00 Reflecting on Past Episodes
00:10 A Harrowing Experience in Las Vegas
00:40 The Importance of Communication Post-Stroke
00:52 Meet Pete Cody: A Story of Resilience
01:05 Tips for a Healthy Brain
01:31 The Role and Impact of Unpaid Carers
02:07 Understanding Aphasia: A Hidden DisabilitySupport the show: Donate Now
This podcast is funded by https://www.bas.org.uk
To watch Jonathan’s film: https://tipofmytonguefilm.com
YouTube: https://www.youtube.com/@tipofmytonguefilmLinkedin: https://www.linkedin.com/in/jonathanhirons/
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The Tavistock Trust for Aphasia website
http://aphasiatavistocktrust.orgLifting the Fog: Colin Lyall's Journey with Aphasia
Send us Fan MailJourney Through Aphasia: An Interview with Colin LyleIn this episode of the On the Tip of My Tongue podcast, Colin Lyle, founder of the Say Aphasia charity, shares his powerful journey from …
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Journey Through Aphasia: An Interview with Colin Lyle
In this episode of the On the Tip of My Tongue podcast, Colin Lyle, founder of the Say Aphasia charity, shares his powerful journey from experiencing a stroke and developing aphasia to actively supporting others with the condition. Colin talks about his stressful lifestyle that led to his stroke, the challenges he faced during recovery, and his efforts in starting the Say Aphasia charity. The episode covers the importance of speech and language therapy, the challenges of living with aphasia, and the mission to raise awareness and support for those affected. Colin’s inspiring story highlights the significance of community and peer support in navigating life with aphasia.
00:00 Introduction to Aphasia
02:22 Colin's Stroke and Initial Challenges
03:45 Speech and Language Therapy Journey
07:47 Founding Say Aphasia Charity
12:04 Expanding the Charity and Overcoming Hurdles
23:09 Future Plans and Reflections
31:33 Conclusion and Resources
Say Aphasia
The Say Aphasia Charity provides supportive drop-in groups for people with aphasia in the UK. It is run by people with aphasia for people with aphasia.Aphasia is not a well known condition and so people with this communication disability can feel alone and isolated from their community.
Our aim is to provide continuous support in a social environment with people who are experiencing similar life changes.
Our charity makes a difference to people living with aphasia by:
- Offering companionship and support
- Helping to adjust to living with aphasia.
- Meeting people who are experiencing a similar life change.
- Making new life long friends.
- Gaining tips and advice from others with aphasia.
- Gaining confidence to socialise and communicate as best they can.
- Re-gaining independence as much as they can.
- Helping to reduce loneliness.
- Providing support in a relaxed and welcoming environment.
- Offering art class and singing class as a therapeutic way to relax and express themselves.
#SayAphasia
https://www.sayaphasia.orgSupport the show: Donate Now
This podcast is funded by https://www.bas.org.uk
To watch Jonathan’s film: https://tipofmytonguefilm.com
YouTube: https://www.youtube.com/@tipofmytonguefilmLinkedin: https://www.linkedin.com/in/jonathanhirons/
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The Tavistock Trust for Aphasia website
http://aphasiatavistocktrust.orgClip of On the tip of my tongue Series 2 Episode 3 - Dr Suzanne Beeke
Send us Fan MailSupport the showSupport the show: Donate NowThis podcast is funded by https://www.bas.org.ukTo watch Jonathan’s film: https://tipofmytonguefilm.comYouTube …
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Support the show: Donate Now
This podcast is funded by https://www.bas.org.uk
To watch Jonathan’s film: https://tipofmytonguefilm.com
YouTube: https://www.youtube.com/@tipofmytonguefilmLinkedin: https://www.linkedin.com/in/jonathanhirons/
Instagram: https://www.instagram.com/tipofmytonguepodcast/
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The Tavistock Trust for Aphasia website
http://aphasiatavistocktrust.orgOn the tip of my tongue Series 2 Episode 5 - Colin Lyall founder of Say Aphasia
Send us Fan MailRebuilding Lives After Stroke: Colin Lyle's Journey with AphasiaIn this episode of the Tip of My Tongue podcast, Colin Lyle, founder of the Say Aphasia charity, discusses his personal …
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Rebuilding Lives After Stroke: Colin Lyle's Journey with Aphasia
In this episode of the Tip of My Tongue podcast, Colin Lyle, founder of the Say Aphasia charity, discusses his personal journey with aphasia following a stroke 11 years ago. Colin shares details about his former stressful career, his initial denial about the severity of his condition, and the extensive speech and language therapy that aided his recovery. He explains the challenges he faced, including the realization that he could no longer continue his previous work. Colin also talks about the founding of Say Aphasia, the expansion of the charity, and the group's mission to support people with aphasia. He touches on the importance of peer support groups, the impact of stress on health, and the future direction of his charity. Colin highlights the need for more awareness and support for aphasia, revealing that many people still lack access to necessary speech and language therapy.
00:00 Introduction to Aphasia and Colin's Journey
02:22 Colin's Stroke and Initial Recovery
03:26 Challenges and Realizations Post-Stroke
07:47 Founding Say Aphasia Charity
11:50 Expanding the Charity and Overcoming Obstacles
23:09 Future Plans and Reflections
31:33 Conclusion and Resources#SayAphasia
https://www.sayaphasia.orgSupport the show: Donate Now
This podcast is funded by https://www.bas.org.uk
To watch Jonathan’s film: https://tipofmytonguefilm.com
YouTube: https://www.youtube.com/@tipofmytonguefilmLinkedin: https://www.linkedin.com/in/jonathanhirons/
Instagram: https://www.instagram.com/tipofmytonguepodcast/
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The Tavistock Trust for Aphasia website
http://aphasiatavistocktrust.org"Inside Speech Therapy with Derek Munn"
Mit Derek Munn
Send us Fan MailUnderstanding the Role of the Royal College of Speech and Language TherapistsIn this episode of the 'Tip of My Tongue' podcast, host Jonathan and Rob engage in a detailed conversation …
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Understanding the Role of the Royal College of Speech and Language Therapists
In this episode of the 'Tip of My Tongue' podcast, host Jonathan and Rob engage in a detailed conversation with Derek Munn, the Director of Policy and Public Affairs at the Royal College of Speech and Language Therapists. Munn shares insights on his role, which involves working with UK governments, managing legislative policies, and advocating for speech and language therapy services. He discusses the history and evolution of the Royal College, highlighting its formation, the role of speech therapists, and the importance of collaborative practices. The conversation also delves into the challenges of treating conditions like aphasia and the need for comprehensive communication support systems. Munn underscores the significance of raising public awareness about various speech and language disorders and the necessity of integrating speech therapists into multidisciplinary healthcare teams.
00:00 Introduction and Guest Welcome
01:19 Overview of the Royal College of Speech and Language Therapists
02:37 History and Evolution of Speech Therapy
05:02 Modern Speech Therapy Practices
06:22 Challenges in Speech Therapy and Aphasia Awareness
12:23 Workplace Inclusivity for People with Communication Challenges
21:41 Raising Awareness and Advocacy
31:37 Conclusion and Final Thoughts
https://www.rcslt.orgSupport the show: Donate Now
This podcast is funded by https://www.bas.org.uk
To watch Jonathan’s film: https://tipofmytonguefilm.com
YouTube: https://www.youtube.com/@tipofmytonguefilmLinkedin: https://www.linkedin.com/in/jonathanhirons/
Instagram: https://www.instagram.com/tipofmytonguepodcast/
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The Tavistock Trust for Aphasia website
http://aphasiatavistocktrust.orgKapitel
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Better Conversations with Aphasia with Dr Suzanne Beeke
Send us Fan MailBetter Conversations with Aphasia: In-Depth with Dr. Suzanne BeekIn this episode, Dr. Suzanne Beek, Associate Professor of Language and Cognition at UCL, discusses her innovative therapy called …
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Better Conversations with Aphasia: In-Depth with Dr. Suzanne Beek
In this episode, Dr. Suzanne Beek, Associate Professor of Language and Cognition at UCL, discusses her innovative therapy called Better Conversations with Aphasia. She explains how aphasia, a communication difficulty often resulting from stroke, affects conversations and the simple strategies her program employs to improve communication between people with aphasia and their loved ones. Dr. Beek also talks about the therapeutic techniques, including video feedback, that speech and language therapists use to facilitate better conversations. The conversation also highlights common communication issues, such as 'test questions,' and the need for greater awareness and support for speech and language therapy.
00:00 Introduction to Dr. Suzanne Beak and Better Conversations with Aphasia
00:13 Understanding Aphasia: Cognitive Effort and Communication Challenges
01:53 Dr. Suzanne Beak's Background and Research Focus
02:48 The Concept of Better Conversations
03:36 Implementing Better Conversations with Aphasia
05:57 The Role of Video Feedback in Therapy
07:55 Common Communication Challenges and Solutions
08:08 Addressing Test Questions in Conversations
10:37 The Emotional Impact of Aphasia
19:12 Raising Awareness and Media Representation
21:26 Different Types of Aphasia: Stroke vs. Primary Progressive Aphasia
34:09 Funding and Support for Aphasia Research
36:10 Training and Future Directions in Aphasia Therapy
41:18 Accessing Better Conversations with Aphasia
42:40 Conclusion and Final Thoughts
https://www.ucl.ac.uk/pals/research/language-and-cognition/language-and-cognition-research/better-conversations-lab
UCL Communication Clinic for people with aphasia and families
https://www.ucl.ac.uk/pals/ucl-communication-clinic
Twitter: https://x.com/BCAphasiaSupport the show: Donate Now
This podcast is funded by https://www.bas.org.uk
To watch Jonathan’s film: https://tipofmytonguefilm.com
YouTube: https://www.youtube.com/@tipofmytonguefilmLinkedin: https://www.linkedin.com/in/jonathanhirons/
Instagram: https://www.instagram.com/tipofmytonguepodcast/
X: http://x.com/buffaloloungeuk
The Tavistock Trust for Aphasia website
http://aphasiatavistocktrust.org
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